Advisory Board

Meet the KLS Foundation Advisory Board


Donna White, Mother of Ryan McKinney

Donna’s son Ryan was misdiagnosed for a period of over seven years. As a result of medication prescribed before he received a diagnosis of KLS,  Ryan suffered a heart attack and died on February 17, 2006. Ryan’s death sparked Donna’s mission to raise the level of KLS awareness in hopes that other children would not continue to suffer from this devastating disorder. In 2007, the first annual “Walking for Ryan Festival” was held in South Carolina and raised nearly $10,000 for KLS research. Donna is an English as a second language instructor/Bilingual Spanish Translator for the Lancaster County School District and Founder of the South Carolina Chapter of Kleine Levin Syndrome at Lancaster, SC. Email: donna@klsfoundation.org

Gaylene Grossman, RN, BSN, CNOR

Gaylene is a Registered Nurse and the Mother of Brian Sabul who had his first episode in April of 2006.  It is because of the Foundation’s presence that Brian was diagnosed within weeks of his illness which is a testament to the need for the awareness and outreach that the KLS Foundation promotes.  Gaylene has partnered with Board of Directors member Lori Haller to present KLS information to Pediatric, Neurology, Psychiatrics and Sleep Disorder Specialists at major medical centers. Email: gaylene@klsfoundation.org