Recent scientific study published on sleep disorders and the subsequent news coverage

There have been several news stories in the popular press and circulating on the internet about the results of a recent scientific study about hypersomnia sleep disorders. These include Foxnews.com and Time (Health & Family)   The scientific paper was published November 14, 2012 in the journal Science Translation Medicine by David Rye et al from the Emory University School of Medicine.  The paper describes new and very interesting studies in 32 patients with various hypersomnia sleep disorders.  It provides some evidence for an...

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International Pediatric Sleep Association

International Pediatric Sleep Association (IPSA) teamed up with Patient Support Groups to host a unique outward educational forum for patients and their families in Manchester UK. The programme ran on Wednesday, 5th December 2012 when the morning session was devoted to Narcolepsy and the afternoon session to Kleine-Levin Syndrome. IPSA -2012 is pleased to use the platform of this international congress to bring the latest in scientific and medical advances direct to those who have the greatest interest in the work. We are delighted to have...

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Announcing the Sixth Annual Run for Ryan

Spring is here and so is the 6th annual Run for Ryan, a Kleine – Levin Syndrome Fundraiser.  On Saturday April 14, a committee of dedicated volunteers headed by Donna White will sponsor the 6th annual Run for Ryan.  This is a special day in Lancaster, South Carolina that includes a county track meet that draws all the high school’s boys and girls, and helps raise awareness of KLS.  In addition to the track meet there will also be games for children, storytelling, face-painting, raffles, free blood pressure screening, a DJ, barbecue...

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Alanna Wong featured on Anderson Cooper

Alanna Wong featured on Anderson Cooper

  Alanna Wong featured on Anderson Cooper Alanna Wong, her parents, (Diane and Randy), and the Neuroradiologist that confirmed Alanna’s diagnosis of Kleine-Levin Syndrome were featured on Anderson Cooper in 2012. Her Neuroradiologist spoke about the changes that occur when Alanna is symptomatic and a-symptomatic. At the time of the filming, Alanna lived in Waikiki, Honolulu. She and her parents flew to New York to help spread the word of Kleine-Levin Syndrome. The following is the...

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Help Find a Cure for KLS by Participating in the KLS Research Program

A blood sample taken from an individual with KLS who has not yet given blood for this study will tremendously help a research study underway. The Kleine-Levin Syndrome (KLS) Foundation has been working closely with Dr. Emmanuel Mignot and his sleep research lab at Stanford University in California for many years to discover the underlying cause and to gain a better understanding of KLS.  Dr. Mignot’s lab has been assembling a very valuable resource for KLS research:  a collection of blood samples, swabs and detailed KLS questionnaire data...

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