KLS Foundations’s First International Conference

KLS Foundations’s First International Conference

Off to a great start! A full house listened to Drs. Arnulf and Mignot’s research update to start to kick-off the conference on Saturday, August 13, 2011. The Conference got off to a great start on Friday afternoon with nearly 100 people arriving, checking in and being able to meet face to face for the first time.  Friday night included the first live meeting of the KLS Board of Directors, which was held as an open meeting with a number of conference attendees participating.  The Board voted in a new Member of the Advisory Board, Caron...

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KLS-Support.org.uk

KLS-Support.org.uk For UK KLS patients and their families there is a new support group linked to the US based KLS Foundation to provide support and information tailored to the UK KLS community. This can be found at http://kls-support.org.uk/ and on Facebook at https://www.facebook.com/groups/104581052974881/.

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KLS FAMILIES MEET

KLS FAMILIES MEET

Eric Haller from Orange County, CA and Alanna Wong of Hawaii (formerly from WA), meet It was an exciting day on Sunday, April 24, 2011 that was preceded by days of anticipation when two KLS families met face-to-face! The Wongs and the Hallers have been “KLS family members” for approximately six years when they were brought together thanks to the KLS Foundation. Alanna and Eric have both dealt with the challenges and heartache of KLS for approximately ten years. They have shared the frustrations associated with KLS. They have experienced...

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A New French Website on KLS

New French Website on KLS A new website for Kleine-Levin Syndrome has been launched.  This website is in French and was started by Johnny Bienvenu who suffers from KLS.  Johnny’s goal is to talk to patients and inform them as much as possible about KLS.  If you can read French, please check it out! The url is:  http://www.kleine-levin.com.

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KLS Mystery Diagnosis is on Oprah’s OWN network

KLS Mystery Diagnosis is on Oprah’s OWN network tonight , February 1, 2011 at 8 PM Pacific Time KLS Mystery Diagnosis is on Oprah’s OWN network tonight, February 1, 2011  at 8PM, Pacific Time.

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IT’S FLU SHOT TIME AGAIN

IT’S FLU SHOT TIME AGAIN Getting a flu shot takes moments. Getting the flu can take days. The CDC recommends a flu shot for everyone age 6 months and over.  By getting the flu shot you will be protecting yourself from possibly triggering a KLS episode.

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