“Touched by 2015 Run for Ryan” by Gaylene Grossman

“Touched by 2015 Run for Ryan” by Gaylene Grossman

“Touched by 2015 Run for Ryan” by Gaylene Grossman I feel very fortunate to have attended the 2015 Run for Ryan in Lancaster, South Carolina along with my son Brian, who is a person with KLS.  It was an experience I will never forget and one that touched me deeply. Like many of you, my son and I followed the annual event on Facebook and the KLS Foundation website; appreciating from afar the efforts to raise awareness and funds each year to honor the memory of Ryan McKinney who tragically passed away in 2006.  His mother Donna...

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Kleine-Levin Syndrome Foundation Fundraiser July 19, 2014​.

Kleine-Levin Syndrome Foundation Fundraiser July 19, 2014​.

Kleine-Levin Syndrome Foundation Fundraiser Benefiting: Nick Smith and all adolescents living with KLS All Proceeds go to Awareness and Research for the Kleine Levin Syndrome Foundation When: Saturday, July 19, 2014 Where: Indian Lake Country Club 10502 E 75th Street, Indianapolis, IN 46236 GOLF SHOTGUN  Begins: at 1:30pm – arrive at 12:30 pm  Cost $35.00 per person– includes Golf/Cart/Box Lunch/Drinks $45.00 includes above PLUS dinner/drinks Prizes awarded [longest drive, closest to pin, longest put] immediately after golf...

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Kleine Levin Syndrome 10K Run

Kleine Levin Syndrome 10K Run

Kleine Levin Syndrome 10K Run  “For many young people with Kleine Levin Syndrome it feels like time travelling – their last clear memory is being at a certain place doing whatever normal people do and suddenly they wake up somewhere else, they have no idea time has travelled forward and they have missed days, weeks, months or even a year! The rest of the world moves on without them. You live with the frightful reality that an episode may occur with devastating effects on the adolescent education, the start of their careers, their...

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Running for Ryan – County Track meet headlines KLS Event – Lancaster News

Running for Ryan – County Track meet headlines KLS Event – Lancaster News

The Running for Ryan KLS Fundraiser was held on April 5th, 2014! The event is held in memory of Ryan McKinney, who died of cardiac arrhythmia, which was caused by a missed diagnosis and over medication of KLS. Read the following article here: Running for Ryan Article If you would like to support our KLS research efforts to find the cause and cure of KLS, please consider donating here: http://klsfoundation.org/donations/  We appreciate your continued support!...

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Announcing the Sixth Annual Run for Ryan

Spring is here and so is the 6th annual Run for Ryan, a Kleine – Levin Syndrome Fundraiser.  On Saturday April 14, a committee of dedicated volunteers headed by Donna White will sponsor the 6th annual Run for Ryan.  This is a special day in Lancaster, South Carolina that includes a county track meet that draws all the high school’s boys and girls, and helps raise awareness of KLS.  In addition to the track meet there will also be games for children, storytelling, face-painting, raffles, free blood pressure screening, a DJ, barbecue...

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KLS T-Shirts now available

KLS T-Shirts now available

The Kleine Levin Syndrome (KLS) T-Shirts are an easy and fun way to spread awareness and remember those who are suffering from KLS. KLS T-Shirts are only $22.50 and can be purchased via eBay by following the link below. http://cgi.ebay.com/ws/eBayISAPI.dll?ViewItem&item=120770490368 100% of the net proceeds go towards KLS research. Thank you for your...

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