KLS Conference Videos Available!

KLS Conference Videos Available!

The First International KLS Conference that was held in San Francisco on August 12-14th 2011 was a great success and was attended by well over 200 participants.  This was a great event for patients, families and researchers to meet face to face and share experiences and network with each other.  Portions of the event were streamed live by conference attendees and we are thrilled that many of you not able to attend were able to participate remotely. The KLS Foundation did arrange for most of the sessions to be professionally recorded and we...

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Life and Strength Following KLS

Life and Strength Following KLS

Dani (left) and Arielle Farber (right) finish the race! More than 4 years after their last episodes of KLS, the Farber siblings tackle the last of the physical and emotional hurdles in their journey to overcome KLS and move beyond the healing process towards full and healthy lives. On October 31, 2010 Dani Farber successfully realized his long-held dream of running a marathon by finishing the Marine Corps Marathon in Washington DC in excellent time.  That same morning Arielle Farber met her own personal goal by completing the Marine Corps...

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Cool KLS Wrist Bands Now Available

Cool KLS Wrist Bands Now Available

Spread the word with KLS awareness wrist bands The Kleine Levin Syndrome (KLS) Bands are an easy and fun way to spread awareness and remember those who are suffering from KLS. We selected the color silver to represent the silver lining of hope, happiness, and health that many KLS patients manage to find despite the challenges of living with KLS. Increased awareness of Kleine Levin Syndrome will help us move towards a treatment and ultimately a cure. KLS bracelets are only $5.00 and 100% of the net proceeds go towards KLS research. To purchase...

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KLS Fundraiser: Walk for Ryan

The 4th annual Walk for Ryan KLS Fundraiser took place on April 17, 2010 in Lancaster, South Carolina Donna White led the initiative to honor the memory of her son Ryan, who struggled with KLS and tragically died of unrelated health complications. The fundraiser took place at the local high school in conjunction with a track meet between the four area high schools. The event drew a spirited crowd in support of the community effort. There was a lot of energy in the air as the high school track teams faced off on a hot day, with the only break...

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ANNUAL RUN FOR RYAN SCHEDULED FOR APRIL 17

The annual Run for Ryan is planned this year for April 17 at the Lancaster High School T-track from 10 am until 1 pm.  The Lancaster High School Athletic Department will sponsor the countywide track event with all of the county’s high schools represented as well as other teams. The festival will include an agency fair, mouth-watering barbeque, music storytelling, children’s games, pictures, free blood pressure checks, and a raffle.  This is the 4th annual fundraiser in memory of Ryan Alexander Mckinney.  A KLS information booth will be...

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Spring Montvale Plaza Fundraiser Raises Research Funds

Third KLS Fundraiser at The Montvale Plaza in Stoneham Massachusetts was another successful event.  About 300 friends and family of the Penny family, whose son Joe has KLS, came out to support the fundraiser and enjoy a spectacular night of dinner, dancing and an opportunity to win some wonderful prizes.  The donated items included landscaping services, Red Sox, Bruins, and Celtics tickets, gift certificates to restaurants.  The high quality of the much desired prizes kept the excitement of the night going.  The dance floor was filled all...

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