“Touched by 2015 Run for Ryan” by Gaylene Grossman

“Touched by 2015 Run for Ryan” by Gaylene Grossman

“Touched by 2015 Run for Ryan” by Gaylene Grossman I feel very fortunate to have attended the 2015 Run for Ryan in Lancaster, South Carolina along with my son Brian, who is a person with KLS.  It was an experience I will never forget and one that touched me deeply. Like many of you, my son and I followed the annual event on Facebook and the KLS Foundation website; appreciating from afar the efforts to raise awareness and funds each year to honor the memory of Ryan McKinney who tragically passed away in 2006.  His mother Donna...

read more

KLS Foundations’s First International Conference

KLS Foundations’s First International Conference

Off to a great start! A full house listened to Drs. Arnulf and Mignot’s research update to start to kick-off the conference on Saturday, August 13, 2011. The Conference got off to a great start on Friday afternoon with nearly 100 people arriving, checking in and being able to meet face to face for the first time.  Friday night included the first live meeting of the KLS Board of Directors, which was held as an open meeting with a number of conference attendees participating.  The Board voted in a new Member of the Advisory Board, Caron...

read more

We are pleased to invite you to attend the KLS Foundation’s First International Conference

We are pleased to invite you to attend the KLS Foundation’s First International Conference

Friday 12 August – Sunday 14 August 2011 Please note the program begins with a Welcome Reception on Friday evening, 12 August, at 17:00, followed by an open Board of Directors meeting from 18:00 – 19:30. Event Location and Accommodations Embassy Suites, San Francisco Airport- Burlingame 150 Anza Blvd. Burlingame, California 94010 Please click on the link below and use the following Group Name and Code to secure the pre-negotiated conference rate.  Alternatively you can contact the hotel by phone and provide them with the same...

read more

KLS Foundation’s First International Conference

Featuring Dr. Emmanuel Mignot (Professor of Psychiatry and Behavioral Sciences and Director of the Center for Narcolepsy at Stanford Medical Center). Dr. Isabel Arnulf (Hospital Pitié-Salpétrière in Paris, France) has also been invited to speak. The KLS Foundation is pleased to invite anyone impacted by or interested in learning more about Kleine Levin Syndrome (KLS) to attend the KLS Foundation’s First International Conference for KLS in San Francisco, CA, USA on August 12-14, 2011. The program is designed for medical professionals,...

read more

Hundreds attend annual KLS event in South Carolina

Hundreds attend annual KLS event in South Carolina

With her blue Run for Ryan hat pulled down low, shielding her from the near 90 degree heat, Donna White spent much of Saturday raising money in honor of her late son. Hundreds of supporters joined her, turning out for the third annual Run for Ryan event at the Lancaster High School track field. The event featured a track meet between Lancaster, Buford and Indian Land high schools There was also plenty of barbecue, face painting and inflatable rides for children. But the main focus was on raising awareness of Kleine-Levin Syndrome (KLS), a...

read more

SC Governor Declares March 29, 2008 as KLS Awareness Day

SC Governor Declares March 29, 2008 as KLS Awareness Day Donna White, Advisory Board Member of the KLS Foundation, has worked tirelessly to raise money for the KLS Foundation and to raise awareness of KLS in South Carolina.  Due to Donna’s diligence, Mark Sanford, Governor of the Great State of South Carolina, proclaimed March 29, 2008 as Kleine-Levin Syndrome Awareness Day and encourages all South Carolinians to learn more about KLS and to work together to raise awareness of this devastating disorder.  You can view the Proclamation by...

read more