Upcoming 2008 KLS Event in South Carolina

Upcoming 2008 KLS Event in South Carolina Lancaster SC is holding the second annual Walking For Ryan Festival on March 29, 2008. The event, started by Donna White in memory of her son Ryan who had KLS and died two years ago of an unrelated heart problem,  will take place at the Lancaster High Track Field from 10 AM until 1 PM. Lancaster’s mayor Joe Shaw will read a proclamation by Governor Mark Sanford declaring March 29 as KLS Awareness Day. There will be lots of fun and activities including a BBQ luncheon prepared by Dr. Johnny Dukes, an...

read more

National Sleep Foundation Seminar, Washington DC

National Sleep Foundation Seminar, Washington DC , March 5-6, 2007 Lori Haller, Media Chairperson, for the KLS Foundation, attended a two day seminar in Washington, DC. The seminar was hosted by the National Sleep Foundation and the American Sleep Apnea Association. Many distinguished doctors lectured about their findings in sleep disorder research. Lori was able to speak briefly at the seminar about the suffering and frustrations of the KLS patients and their families, focusing on the extended and tedious trials before a correct diagnosis is...

read more

First KLS Fundraising Event Held in Boston

First KLS Fundraising Event Held in Boston-June 11, 2006 First KLS Foundation Fundraiser in Boston a Success Twenty five year old Rebecca Davis could no longer stand by as her childhood friend suffered from KLS. She felt compelled to do something to help. Her passion turned into action as she planned the KLS Foundation’s first fundraising event that took place on June 11, 2006 in Boston. Big City Pool, a popular restaurant and billiard hall was decorated and ready to welcome our guests. It had rained in Boston for two weeks straight and when...

read more