Help Find a Cure for KLS by Participating in the KLS Research Program

A blood sample taken from an individual with KLS who has not yet given blood for this study will tremendously help a research study underway. The Kleine-Levin Syndrome (KLS) Foundation has been working closely with Dr. Emmanuel Mignot and his sleep research lab at Stanford University in California for many years to discover the underlying cause and to gain a better understanding of KLS.  Dr. Mignot’s lab has been assembling a very valuable resource for KLS research:  a collection of blood samples, swabs and detailed KLS questionnaire data...

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KLS T-Shirts now available

KLS T-Shirts now available

The Kleine Levin Syndrome (KLS) T-Shirts are an easy and fun way to spread awareness and remember those who are suffering from KLS. KLS T-Shirts are only $22.50 and can be purchased via eBay by following the link below. http://cgi.ebay.com/ws/eBayISAPI.dll?ViewItem&item=120770490368 100% of the net proceeds go towards KLS research. Thank you for your...

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KLS Conference Videos Available!

KLS Conference Videos Available!

The First International KLS Conference that was held in San Francisco on August 12-14th 2011 was a great success and was attended by well over 200 participants.  This was a great event for patients, families and researchers to meet face to face and share experiences and network with each other.  Portions of the event were streamed live by conference attendees and we are thrilled that many of you not able to attend were able to participate remotely. The KLS Foundation did arrange for most of the sessions to be professionally recorded and we...

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Researchers awaken to Kleine-Levin Syndrome

Researchers awaken to Kleine-Levin Syndrome

Drs. Isabelle Arnulf, Yakov Sivan, Frederick Andermann, Geert Mayer, Ann-Marie Landtblom, Yu-Shu Huang, Emmanuel Mignot and Charles Chiu participating in a panel discussing treatment options during the KLS Conference. About 200 patients and their families are gathering in Burlingame August 12-14th, 2011 for the world’s first Kleine-Levin Syndrome conference – a three-day event that will focus on research into the disease and providing support for patients. For many, the conference will be their first opportunity to meet with others...

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KLS Foundations’s First International Conference

KLS Foundations’s First International Conference

Off to a great start! A full house listened to Drs. Arnulf and Mignot’s research update to start to kick-off the conference on Saturday, August 13, 2011. The Conference got off to a great start on Friday afternoon with nearly 100 people arriving, checking in and being able to meet face to face for the first time.  Friday night included the first live meeting of the KLS Board of Directors, which was held as an open meeting with a number of conference attendees participating.  The Board voted in a new Member of the Advisory Board, Caron...

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KLS-Support.org.uk

KLS-Support.org.uk For UK KLS patients and their families there is a new support group linked to the US based KLS Foundation to provide support and information tailored to the UK KLS community. This can be found at http://kls-support.org.uk/ and on Facebook at https://www.facebook.com/groups/104581052974881/.

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