Important – Blood Sample Participants

Important – Blood Sample Participants

We have been informed that the Stanford University KLS research group has sent out upon request approximately 30 blood sampling kits to participants in the KLS conference, but has not yet received any of them back.  A new KLS study is about to begin and it is very important to have these blood samples as soon as possible to be included in the study. We would also like to help by determining if there is an issue with people receiving or returning the kits.  If you were expecting a kit and did not receive one, or if you received one and have...

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KLS Foundation Awards Grant to Dr. Emmanuel Mignot for Genetic Research

KLS Foundation Awards Grant to Emmanuel Mignot of Stanford University for Genetic Research January 6, 2016 – The Kleine-Levin Syndrome (KLS) Foundation, a patient advocacy group promoting research and supporting families dealing with KLS, today announced that the KLS Foundation has awarded Professor Emmanuel Mignot of Stanford University (Palo Alto, California) a research grant to advance studies investigating the genetics of KLS. This grant will be used to support studies including the further genotyping of individuals with KLS to confirm...

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International Pediatric Sleep Association

International Pediatric Sleep Association (IPSA) teamed up with Patient Support Groups to host a unique outward educational forum for patients and their families in Manchester UK. The programme ran on Wednesday, 5th December 2012 when the morning session was devoted to Narcolepsy and the afternoon session to Kleine-Levin Syndrome. IPSA -2012 is pleased to use the platform of this international congress to bring the latest in scientific and medical advances direct to those who have the greatest interest in the work. We are delighted to have...

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Help Find a Cure for KLS by Participating in the KLS Research Program

A blood sample taken from an individual with KLS who has not yet given blood for this study will tremendously help a research study underway. The Kleine-Levin Syndrome (KLS) Foundation has been working closely with Dr. Emmanuel Mignot and his sleep research lab at Stanford University in California for many years to discover the underlying cause and to gain a better understanding of KLS.  Dr. Mignot’s lab has been assembling a very valuable resource for KLS research:  a collection of blood samples, swabs and detailed KLS questionnaire data...

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LETTER TO THE KLS COMMUNITY

Dear KLS Foundation Members, The Kleine-Levin Syndrome (KLS) Foundation has been working closely with Dr. Mignot’s lab at Stanford University in California for many years to discover the underlying causes of KLS.  Many of you have already participated in this effort by completing questionnaires and submitting blood samples and we are beginning to see the results of these efforts.  If you have already participated in this study, we truly thank you for your help. There are several promising leads as to the underlying cause of KLS due to the...

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Stanford’s KLS Research Program Seeking Volunteers For A Viral Study

Stanford’s KLS Research Program Seeking Volunteers For A Viral Study Studies at the Center for Narcolepsy research (CNR) at Stanford University reveal that in 72% of the analyzed cases, the initial episode was preceded by symptoms of infection (i.e. flu-like syndrome, fever, cold, etc.).  Furthermore, in over half of the analyzed cases, patients reported the same flue-like symptoms at the beginning of subsequent KLS episodes.  The incidence of infection at the onset of KLS episodes seems far too frequent to be due to mere chance.  As...

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