KLS Tip #1 From Mat Sherman – Don’t let KLS Control You Outside of Episodes

KLS Tip #1 From Mat Sherman – Don’t let KLS Control You Outside of Episodes

Great video from our friend Mat Sherman, what a great attitude and a powerful reminder for all of us! For more videos from Mat and his experiences with KLS, check out his YouTube page, and don’t forget to subscribe. Thanks for letting us share the video Mat!  

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12 Tips for Living With Kleine-Levin Syndrome (KLS) by Alanna Wong

12 Tips for Living With Kleine-Levin Syndrome (KLS) by Alanna Wong

Alanna Wong wrote an article about tips for Living With Kleine-Levin Syndrome (KLS). You can read the 12 Tips she writes about here: 12 KLS Tips by...

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KLS Foundation is seeking volunteers

Dear KLS community, As you know, the Kleine-Levin Syndrome (KLS) Foundation is a volunteer-run patient advocacy group established 16 years ago to support patients, families and healthcare professionals dealing with KLS. The KLS Foundation Board is now seeking to expand our capabilities to better serve the KLS community and bolster research initiatives.  This is your opportunity to volunteer your skills and time, to a cause you care about. The KLS Foundation has begun a KLS related database of patient, community and professional contacts to...

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2nd Annual Montvale Plaza Fundraiser

2nd Annual Montvale Plaza Fundraiser on March 21, 2008 2nd Annual KLS Fundraiser @ The Montvale Plaza March 21st @ 7pm “D Street Band” Dinner, Dancing & Auction Our goals are to raise awareness, support scientific research, to find effective treatments, and ultimately find a cure for Kleine-Levin Syndrome. This is a fundraiser for a rare medical disorder called Kleine-Levin Syndrome (KLS).  KLS is a medical disorder characterized by excessive amounts of sleep which usually strikes adolescents.  The person becomes extremely fatigued,...

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New York City Marathon 2006

New York City Marathon 2006

New York City Marathon 2006 The New York City Marathon is one of the great spectacles in sports, and the theme of this year’s event was: “One Race. 37,000 Stories.” All runners have a story to tell – a story that, amidst 37,000 other stories, is uniquely their own. Participants were invited to share their stories, and the KLS Foundation was proud to share the heartfelt and moving story of first time marathoner Danielle Friedberg. Like many people close to KLS patients, Danielle felt hopeless watching her friend struggle during a...

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Run for KLS-August 27, 2006

Run for KLS-August 27, 2006 Danielle Friedberg; friend of the KLS Foundation, completed a half marathon in NYC on Aug. 27, 2006. Danielle is training to race in the upcoming NYC marathon on behalf of the KLS Foundation. Qualified runners interested in joining the KLS team, or to sponsor a runner contact us here.

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