Doctors Familiar with KLS

You may want to use this list as a starting point for your search for a doctor.  Finding a doctor or other health professional that is right for you is a personal process that can take time.

It is important to find someone you feel you can speak with openly and honestly. Even if your doctor does not know much about Kleine-Levin Syndrome (KLS), he or she should take the time to learn about it. As you search for a health care professional, keep in mind that you have certain rights no matter who you are, what challenges you are facing, or how much money you have.  You have a right to: 

·      Privacy, confidentiality and respect

·      Sensitivity to your needs and background

·      An explanation of the treatment you are receiving and why

·      Freedom to express yourself

The list is provided solely as an aid to those seeking physicians familiar with Kleine-Levin Syndrome. These physicians’ names were given to us by other KLS patients. Inclusion in the following list does not imply an endorsement in any way by the KLS Foundation.

 

United States

ALABAMA

Dr. McDanough
Hilands Medical Center
Jackson County Hospital Sleep Center
Scottsboro, Alabama
Tel:  256-259-4444

CALIFORNIA

Emmanuel Mignot, M.D., PhD
Stanford University Center of Narcolepsy
Dept. of Psychiatry
1201 Welch Road
Stanford, CA 94305-5485
Tel: 650-725-6517
Note: Dr. Mignot heads the KLS Foundation research program.

Dr. Milton Erman or Dr. Merrill Mitler
Scrips Pacific Sleep Medical Services
9834 Genessee Avenue, #328
La Jolla, CA 92037
Tel:  858-657-0550

UCLA Sleep Disorder Center
Santa Monica, CA
Tel:  310-319-4062

Dr. Sydney C. Choslovsky
65 N. 14th St.
San Jose, CA
Tel: 408-279-1400

Christian Guilleminault, M.D.
Stanford Health Services
Sleep Disorder Clinic
401 Quarry Road – Suite 3301
Stanford, CA 94305
Tel: 650-723-6601

David Paltin, Ph.D.
Psychologist
173-B N. Glassell
Orange, CA 92866
Tel:  714-796-1752

Dr. William Hitchcock
La Jolla Pediatrics
4150 Regents Park Row #215
La Jolla, CA 92037

GEORGIA

Dr. David B. Rye, MD; PhD
Professor of Neurology
Emory Healthcare Program in Sleep Medicine
Atlanta, GA, USA
Tel: 404-712-7533

HAWAII

Dr. Ye Hsia (assistant: Janet Brumblay)
Kapiolani Genetics
319 Punahou Street – Suite 530
Honolulu, Hawaii 96826
Tel: 1-800-983-6472

ILLINOIS

Dr. Anna Ivanenko, Psychiatrist
495 Central Ave. Suite 203
Northfield, IL 60093
Phone: (847) 251-1046

MASSACHUSETTS

Allan Ropper, M.D.
Joshua D. Katz, M.D.
St. Elizabeth’s Medical Center
Department of Neurology
736 Cambridge Street
Boston, MA 02135-2997

Thomas Scammell, M.D.
Beth Israel Boston Sleep Disorder Center
330 Brookline Avenue
Boston, MA 02215
Tel: 617-667-0833/617-667-3237

Norman P. Spack, M.D.
Clinical Director, Endocrine Division
Children’s Hospital Boston
Dept of Endocrinology
Harvard Medical School
300 Longwood Avenue
Boston, MA 02115

Joel Herskowitz, M.D.
New England Medical Center –
Floating HospitalDivision of Pediatric Neurology
750 Washington Street
Boston, MA 02111
Tel: 508 879-7532

MICHIGAN

Dr. Hobin
University of Michigan Hospital

MINNESOTA

Dr. Mark Mahowald, MD (Director)
Dr. Laurel Wills, MD (Staff Physician)
Hennepin County Medical Center
Minnesota Regional Sleep Disorders Center
701 Park Avenue
Minneapolis, MN 55412

Dr. Michael Silber
Sleep Disorder Center, Mayo Clinic
Rochester, MN

MISSOURI

St. Louis Sleep Center

Dr. Nau

NEW JERSEY

Dr. Michael D. Merkin
34-36 Progress Street, B-3
Edison, NJ 08820
Tele:  908-757-6633

NEW YORK

Orrin Devinsky, MD
Professor of Neurology, Neurosurgery, and Psychiatry
Department of Neurology
New York University School of Medicine
223 East 34 Street
New York, New York 10016
Tel:  646-558-0803

Edwin H. Kolodny, M.D.
Professor and Chairman
Dept. of Neurology
New York University Medical Center
550 First Avenue
New York, NY 10016

Dr. Michael J. Thorpy M.D.
Montefiore Medical Center
The University Hospital for the Albert Einstein College of Medicine
111 East 210th Street
Bronx, NY 10467-2490
Tel: 718-920-4841

Dr. Gary Zammit
Sleep Disorders Institute
1090 Amsterdam Avenue17th Floor
New York, New York

NORTH CAROLINA

Anne-Marie Turnier, MD
Apex Child, Adolescent & Adult Psychiatry, P.A.
108 B North Salem St.
Suite 203
Apex, NC 27502
Tel:  919-632-2803
Fax:  919-363-9927

OHIO

Dr. Bruce Cohen
Cleveland Clinic
Cleveland, OH

Dr. Derrick Lonsdale
Cleveland

Dr. Maxwell Wiznitzer
Cleveland Rainbow Babies

PENNSYLVANIA

Dr. Daniel J. Buysse, MD (Board Certified in Psychiatry and Sleep Medicine)
University of Pittsburgh Physicians
Department of Psychiatry
Western Psychiatric Institute & Clinic
3811 O’Hara Street
Pittsburgh, PA 15213
Phone:  (412) 624-1000

Dr. Ronald E. Dahl
University of Pittsburg Medical Center
Tel:  412-624-1810

TENNESSEE

Dr. Schoumacher
Director of the Sleep Clinic for LeBonhaur Children’s Hospital
Memphis, TN
His assistant is Linda
Tel:  901-572-3337

Dr. Robin Morgan
UT Medical Group
Division of Pediatric Neurology
LeBonheur Children’s Medical Center
Memphis, TN
Clinic: 901-287-5060
Appt:  901-448-2000

TEXAS

Phillip M. Alapat, MD
10019 South Main Street, Suite A-9
Houston, TX 77025
Tel:  713-798-3300

Dr. Don Glaze
Houston
Tel:  713-790-3105

Todd J. Swick, M.D, P. A.
F. A. A. N.
Diplomate, American Board of Sleep Medicine
Sleep Wake Disorders Neurology
8333 Freeway, Suite 102
Houston, TX 77024
Tel:  713-465-9282
Fax:  713-465-9248

Dr. Alex d’Cruz
5120 29th Drive, Suite D
Lubbock, TX 79407
Tel:  806-281-9999
Fax:  806-281-9900

Dr. David Ostransky
2801 S. Hulen Street, Suite 600
Fort Worth, TX 76109
Tel:  817-731-7046

WASHINGTON

Katherine Brown, MD
Polyclinic Downtown
509 Olive Way – Suite 900
Seattle, WA 98101
Office phone 206-860-4700
Office Fax 206-624-9520
Board Certified by American Board of Family Medicine
Practice includes care of all age ranges, from infancy through adulthood.
http://www.polyclinic.com.

Dr. Jon Kooiker
Olympia Neurology
Olympia, WA

Nathaniel F Watson, MD, MS
Neurologist (brain, nervous system), Psychiatrist
Harborview Medical Center
325 9th Ave # 359803
Seattle, WA 98104
(206) 744-3000

International

BELGIUM

Professor Paul Linkowski
ULB – Universite Libre de Bruxelles
Hôpital ERASME
Unité métabolique de psychiâtrie
Laboratoire de sommeil
Route de Lennik, 808
B-1070 BRUSSELS
BELGIUM
tél : +32 2 555 32 21
fax : +32 2 555 69 55
e-mail : Paul.Linkowski@ulb.ac.be
Website:  http://www.ulb.ac.be/erasme/

Doctor Pierre Fossion
ULB – Universite Libre de Bruxelles
Hôpital CHU Brugmann
Psychiâtrie
Place Van Gehuchten, 4
B-1020 BRUSSELS
BELGIUM
tél : +32 2 477 22 78
e-mail : pierre.fossion@chu-brugmann.be
website : http://www.chu-brugmann.be

Professeur Olivier Van Reeth
Hôpital ERASME
Centre d’Etudes des Ryhtmes Biologiques (CERB)
ULB – Université Libre de Bruxelles
CP618, route de Lennik, 808
B-1070 BRUSSELS
BELGIUM
tél : +32 2 555 32 21
fax : +32 2 555 69 55
e-mail : ovanree@ulb.ac.be
http://www.ulb.ac.be/erasme/

CANADA

Dr. Peter Camfield
IWK Health Centre
Pediatric Neurology
Dartmouth, Nova Scotia
Canada
902-470-8471

Brian Murray MD
Neurology and Sleep Medicine
Womens Colelge Campus
Burton Hall, Room 41860
Grofvenor Street
Toronto, Ontario
Canada M5F1B2
Telephone: 416-323-6486

Dr. Joseph Barbera MD, FRCPC, D, ABSM
Toronto Western Hospital
750 Dundas St. West, Suite 259
Box 22
Toronto, Ontario
Canada M6J 3S3
Phone:  416-603-5800
Fax:  416-603-5360

ENGLAND

Guy’s and St Thomas’ Lifespan Sleep Disorder Services, Guy’s and St Thomas’ NHS Foundation Trust, London

Prof Paul Gringras, Paediatric Sleep and Neurodisability, Evelina Children’s Hospital

Dr Guy Leschziner, Consultant Adult Neurologist and Sleep Physician, Guy’s Hospital

Dr Michael Farquhar, Consultant, Paediatric Sleep, Evelina Children’s Hospital

National Hospital for Neurology & Neurosurgery,University College London Hospitals NHS Foundation Trust

Prof Matthew Walker, Professor of Neurology, National Hospital for Neurology & Neurosurgery

http://www.uclh.nhs.uk/OurServices/Consultants/Pages/ProfMatthewWalker.aspx

Southampton, Solent NHS Trust

Dr Cathy Hill – Consultant Community Paediatrician and Senior Lecturer at the University of Southampton

Professor David Nutt

 

FRANCE

Isabelle Arnulf, MD, PhD
Fédération des pathologie du Sommeil
Hôpital Pitié-Salpêtrière
47-83 Boulevard de l’Hôpital
75013 Paris, France

IRELAND

Dr. Noel Clancy
Eden Bawn Navan Rd
Trim
CoMeath
Ireland

ISRAEL

Nathan Gadoth, M.D.
Department of Neurology
Mayanei Hayeshua Medical Center
Bnei Barak, IL
Tel: +972-3-5775455
Fax: +972-3-5775454
Email: gadoth@post.tau.ac.il

Peretz Lavie, PhD
Andre Ballard Chair in Biological Psychiatry
The Bruce Rappaport Faculty of Medicine
Technion – Israel Institute of Technology
Haifa 31096
(collaborates with Dr. Gadot)

Yakov Sivan, MD
Director
Institute of Pediatric Pulmonology
Critical Care and Sleep Medicine
Dana Children’s Hospital
Tel Aviv Medical Center
Tel: +972-3-697-4614