KLS Foundation Discussion Forum

KLS Segment will air on the Dr. Oz show on April 19, 2010

2010-04-13T18:05:23Z

The Dr. Oz show will focus on sleep disorders on April 19th. There will be a segment on KLS. The show airs on different channels and times in different cities. Please check your local listings or log onto the Dr. Oz website to see when it will air in your city.

Suggestions for KLS Foundation

2008-08-21T11:09:00Z

The focus of the KLS Foundation has been on providing information and support to KLS patients and families, helping to educate the medical community about KLS, raising funds, and promoting KLS research programs.

As the KLS Foundation approaches its 10 year anniversary we are interested in thoughts from the membership on ways that the Foundation could further assist patients, their families and the medical community.

Please feel free to post suggestions or to email responses directly.

Tanis Burnett’s Forum

2008-05-16T08:07:20Z

Here is the url to Tanis’s KLS Forum. It is another great place to connect with others with KLS.

http://klssupport.proboards100.com/index.cgi?board=kls

UK Documentary Searching for Contacts

2007-10-24T14:23:12Z

Earlier this summer during a business trip to the UK I talked in person with a local television producer who was doing research into a science series to be produced for British television, looking into rare and extraordinary neurological conditions, including KLS. The aim of the series is to take a serious, in-depth look into a wide range of these unusual syndromes, bringing them into the public’s consciousness through the life-stories of sufferers and the testimony from doctors and specialists. This type of program is in line with the Foundation’s mission to raise awareness of KLS generally and specifically in the medical community.

The documentary series including up to an hour on KLS has been funded and is moving into the production phase. The producers are currently looking for patients and families to talk with, especially anyone located in the UK. In addition they are hoping to have someone agree to be filmed during an episode. As a KLS patient (although I have been episode free for the last 6 year) I know that being filmed in an episode is not at the top of anyone’s list but from a video documentary perspective it does provide a more compelling story.

If you are interested in more information or interested in speaking with the producers please contact the foundation or you can contact Sam Campbell who is heading up the KLS portion of the documentary at “Campbell $LWT$, Sam” Sam dot Campbell dot LWT at granadamedia dot com.

Research Funding

2007-08-06T09:18:38Z

The KLS Foundation is pleased to inform you that a supplemental $10,000 grant award towards the KLS research program lead by Emmanuel Mignot, MD PhD
at Stanford University has been approved by the KLS Foundation Board.