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    <title type="text">KLS Foundation Discussion Forum</title>
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    <rights>Copyright (c) 2010</rights>
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    <id>tag:klsfoundation.org,2010:03:01</id>


    <entry>
      <title>Blood Donation</title>
      <link rel="alternate" type="text/html" href="http://klsfoundation.org/kleine/forums/viewthread/107/" />      
      <id>tag:klsfoundation.org,2009:kleine/forums/viewthread/.107</id>
      <published>2009-11-29T13:19:03Z</published>
      <updated></updated>
      <author><name>mini_hoy</name></author>
      <content type="html">
      <![CDATA[
        <p>I went along to try to give blood the other day, and they asked me if I had had any hospital examinations or tests ever, so I mentioned the EEG&#8217;s, blood tests, lumbar punctures, CT and MRI Scans I have had while doctors were investigating what was wrong with me.&nbsp; I explained it was because of me being a KLS sufferer, and they said they would have to investigate if I could give blood in case it triggered an episode (apparently epileptics have to be clear 3 years before they can give blood - due to the effects on the brain of giving blood). Has anyone else had this? Given blood and been ok or given blood and had an episode?&nbsp; It hadn&#8217;t even crossed my mind that KLS would have had any effect on my being able to give blood but am now worried even if they say it is ok in case it does trigger it, as KLS is so rare it may not be documented properly!</p>

<p>Nat<br />
xxx
</p>
      ]]>
      </content>
    </entry>

    <entry>
      <title>BEFORE GETTING A DIAGNOSIS OF KLS, WERE ANY OF YOU MISDIAGNOSED AND IF SO,&amp;nbsp; WITH WHICH DIAGNOSIS&#63;</title>
      <link rel="alternate" type="text/html" href="http://klsfoundation.org/kleine/forums/viewthread/36/" />      
      <id>tag:klsfoundation.org,2008:kleine/forums/viewthread/.36</id>
      <published>2008-05-03T18:32:57Z</published>
      <updated>2008-05-03T19:35:13Z</updated>
      <author><name>DonnazBiz</name></author>
      <content type="html">
      <![CDATA[
        <p>I have been under the impression that I only had chronic fatigue and depression for many years. I just self-diagnosed myself less than 1 week ago with the KLS. Of course, until I went to a psychiatrist, my F.P.M.D. would say, &#8220;you just need to exercise more&#8221;.&nbsp; That seemed difficult when your muscles are actually weak from lying in bed so much. I have recently been making an attempt to lift light weights to build up my strength, during my remissions. I got validated more when I sought out a Psychiatrist for help. Now I would like to progress to a physician in my area or state, who is knowledgeable in this new KLS diagnosis? Where on this website can I find such information. Thanks!&nbsp; Donna
</p>
      ]]>
      </content>
    </entry>

    <entry>
      <title>Share : how to convert DVD and video to iPhone,iPod,Zune,PSP , etc</title>
      <link rel="alternate" type="text/html" href="http://klsfoundation.org/kleine/forums/viewthread/112/" />      
      <id>tag:klsfoundation.org,2010:kleine/forums/viewthread/.112</id>
      <published>2010-02-07T06:54:37Z</published>
      <updated></updated>
      <author><name>goodfriend</name></author>
      <content type="html">
      <![CDATA[
        <p>Share : how to convert DVD and video to iPhone,iPod,Zune,PSP , etc<br />
Download Ultimate DVD + Video Converter Suite at <b><a href="http://www.oursdownload.com/dvd-video-converter.html">click here </a></b><br />
Part 1:Convert DVD movie to iPhone, iPod touch/classic/video/nano, Zune, PSP, etc<br />
Part 2:Convert AVI, WMV, MPEG, RM, RMVB, ASF, MOV, DivX, XviD, MPG, etc to iPhone, iPod touch/classic/video/nano, Zune, PSP, etc<br />
It is easy-to-use and the converting speed is fast! After testing, all formats conversions work well, the output audio and image quality is excellent! Let&#8217;s view the steps.<br />
Part 1: Convert DVD movie to iPhone, iPod touch/classic/video/nano, Zune, PSP, etc<br />
1.Download the latest version Ultimate DVD Video Converter Suite at <b><a href="http://www.oursdownload.com/dvd-video-converter.html">click here </a></b> and install it. <br />
<a href="http://www.oursdownload.com/DVD and Video Downloads - oursdownlaod_com.files/dvd-video-ipod1.jpg">http://www.oursdownload.com/DVD and Video Downloads - oursdownlaod_com.files/dvd-video-ipod1.jpg</a><br />
2. Run the Ultimate DVD Converter, load your DVD by clicking &#8216;Open DVD&#8217; button or choosing &#8216;Open DVD&#8217; from &#8216;File&#8217; drop down menu. One or several titles appear in the list after loading DVD.<br />
<a href="http://www.oursdownload.com/DVD and Video Downloads - oursdownlaod_com.files/dvd-video-ipod2.jpg">http://www.oursdownload.com/DVD and Video Downloads - oursdownlaod_com.files/dvd-video-ipod2.jpg</a><br />
3. Profile select. You can choose all video formats: iPod, iPhone, iPod touch, iPod video nano, Zune, PSP, video capable MP3 players, video capable mobile phones, Pocket P.C and so on. iPod MPEG4 Movie(.mp4) is the default DVD for iPod video quality. Set the appropriate format as you like.<br />
<a href="http://www.oursdownload.com/DVD and Video Downloads - oursdownlaod_com.files/dvd-video-ipod3.jpg">http://www.oursdownload.com/DVD and Video Downloads - oursdownlaod_com.files/dvd-video-ipod3.jpg</a><br />
4. Output settings. Set your Audio/Video output Settings and tick appropriate parameters.<br />
<a href="http://www.oursdownload.com/DVD and Video Downloads - oursdownlaod_com.files/dvd-video-ipod4.jpg">http://www.oursdownload.com/DVD and Video Downloads - oursdownlaod_com.files/dvd-video-ipod4.jpg</a><br />
5. Choose the pathname where you want to save your video files by clicking the right button of Output table. When everything is setted well, click the &#8216;Convert&#8217; button to start converting.</p>

<p>Tips: <br />
Tip1: Crop&#8212;&#8212;Choose the crop mode<br />
Tip2: Resize&#8212;&#8212;&#8212;-Choose the output size you need<br />
Set Crop to &#8220;Crop both black bands&#8221; and resize to be &#8220;stretch to full screen&#8221; if you don&#8217;t need to keep the subtitle.<br />
Set crop to &#8220;Crop the upper black band&#8221; so you can keep the subtitle in the down black band.<br />
<a href="http://www.oursdownload.com/DVD and Video Downloads - oursdownlaod_com.files/dvd-video-ipod5.jpg">http://www.oursdownload.com/DVD and Video Downloads - oursdownlaod_com.files/dvd-video-ipod5.jpg</a><br />
Tip3: Mode<br />
Direct mode, you can convert the main movie directly. <br />
Batch mode, you can choose the chapter you need to convert.<br />
Part 2: Convert AVI, WMV, MPEG, RM, RMVB, ASF, MOV, DivX, XviD, MPG, etc to iPhone, iPod touch/classic/video/nano, Zune, PSP, etc<br />
1.Download the latest version Ultimate DVD Video Converter Suite at <b><a href="http://www.oursdownload.com/dvd-video-converter.html">click here </a></b> and install it. <br />
<a href="http://www.oursdownload.com/DVD and Video Downloads - oursdownlaod_com.files/dvd-video-ipod6.jpg">http://www.oursdownload.com/DVD and Video Downloads - oursdownlaod_com.files/dvd-video-ipod6.jpg</a><br />
2. Run the Ultimate Video Converter, load the video files you&#8217;d like to convert by clicking &#8216;Open file&#8217; button.<br />
<a href="http://www.oursdownload.com/DVD and Video Downloads - oursdownlaod_com.files/dvd-video-ipod7.jpg">http://www.oursdownload.com/DVD and Video Downloads - oursdownlaod_com.files/dvd-video-ipod7.jpg</a><br />
3. Profile select. You can choose all video formats: iPod, iPhone, iPod touch, iPod video nano, Zune, PSP, video capable MP3 players, video capable mobile phones, Pocket P.C and so on. iPod MPEG4 Movie(.mp4) is the default DVD for iPod video quality. Set the appropriate format as you like.<br />
4. Output settings. Set your Audio/Video output Settings and tick appropriate parameters. <br />
5. Choose the pathname where you want to save your video files by clicking the right button of Output table. When everything is setted well, click the &#8216;Convert&#8217; button to start converting.</p>

<p>Tips: <br />
Tip1: Crop&#8212;&#8212;Choose the crop mode<br />
Tip2: Resize&#8212;&#8212;&#8212;-Choose the output size you need<br />
Set Crop to &#8220;Crop both black bands&#8221; and resize to be &#8220;stretch to full screen&#8221; if you don&#8217;t need to keep the subtitle.<br />
Set crop to &#8220;Crop the upper black band&#8221; so you can keep the subtitle in the down black band.<br />
Tip3: Mode<br />
Direct mode, you can convert the main movie directly. <br />
Batch mode, you can choose the chapter you need to convert.</p>

<p>Download Ultimate DVD + Video Converter Suite at <b><a href="http://www.oursdownload.com/dvd-video-converter.html">click here </a></b>
</p>
      ]]>
      </content>
    </entry>

    <entry>
      <title>KLS Facebook Groups</title>
      <link rel="alternate" type="text/html" href="http://klsfoundation.org/kleine/forums/viewthread/109/" />      
      <id>tag:klsfoundation.org,2009:kleine/forums/viewthread/.109</id>
      <published>2009-12-31T19:57:06Z</published>
      <updated></updated>
      <author><name>alannaw2323</name></author>
      <content type="html">
      <![CDATA[
        <p>Hi Everyone,</p>

<p>I just wanted to share with you some KLS groups that have been formed on facebook. These groups are great ways to stay connected with the KLS community and to raise awareness for KLS. Please join them if you have a facebook. Here are the links:</p>

<p><a href="http://www.facebook.com/#/group.php?gid=47093717831&amp;ref=ts">http://www.facebook.com/#/group.php?gid=47093717831&amp;ref=ts</a></p>

<p><a href="http://www.facebook.com/#/group.php?gid=2475711743&amp;ref=ts">http://www.facebook.com/#/group.php?gid=2475711743&amp;ref=ts</a></p>

<p><a href="http://www.facebook.com/#/group.php?gid=106441131749&amp;ref=search&amp;sid=100000550846663.3183414010..1">http://www.facebook.com/#/group.php?gid=106441131749&amp;ref=search&amp;sid=100000550846663.3183414010..1</a>&nbsp;  -(this is an Australian group for KLS sufferers)</p>

<p>Thanks!<br />
-AW
</p>
      ]]>
      </content>
    </entry>

    <entry>
      <title>Lithium</title>
      <link rel="alternate" type="text/html" href="http://klsfoundation.org/kleine/forums/viewthread/108/" />      
      <id>tag:klsfoundation.org,2009:kleine/forums/viewthread/.108</id>
      <published>2009-12-30T11:26:55Z</published>
      <updated></updated>
      <author><name>alannaw2323</name></author>
      <content type="html">
      <![CDATA[
        <p>Hi All,</p>

<p>I was wondering if any of you have tried lithium and if so, what were your results with it? Did it help you or did it make you worse? Greatly apprieciated. </p>

<p>-AW
</p>
      ]]>
      </content>
    </entry>

    <entry>
      <title>Is there any way to facilitate getting back to normal&#63;</title>
      <link rel="alternate" type="text/html" href="http://klsfoundation.org/kleine/forums/viewthread/105/" />      
      <id>tag:klsfoundation.org,2009:kleine/forums/viewthread/.105</id>
      <published>2009-10-26T18:21:12Z</published>
      <updated></updated>
      <author><name>Mom in Philly</name></author>
      <content type="html">
      <![CDATA[
        <p>Hi,</p>

<p>Has anyone found a way to &#8220;pull out&#8221; of an episode after the sleep stage has ended? I&#8217;m talking about the awful stage when you are awake but still feel like your brain isn&#8217;t back to normal. During the past few episodes, my son has found this stage to be going on longer than earlier episodes and it&#8217;s very upsetting to him. He feels like he&#8217;s almost &#8220;back&#8221; but knows that he isn&#8217;t 100% yet. He worries that he&#8217;ll stay at this stage and never get back to normal. He&#8217;s lethargic, unable to do anything that takes brain power, and worried.</p>

<p>Any advice would be most helpful.</p>

<p>Thanks!
</p>
      ]]>
      </content>
    </entry>

    <entry>
      <title>Not quite an episode!!</title>
      <link rel="alternate" type="text/html" href="http://klsfoundation.org/kleine/forums/viewthread/78/" />      
      <id>tag:klsfoundation.org,2008:kleine/forums/viewthread/.78</id>
      <published>2008-12-23T06:36:30Z</published>
      <updated>2008-12-23T09:08:18Z</updated>
      <author><name>mini_hoy</name></author>
      <content type="html">
      <![CDATA[
        <p>I am in a bit of a haze at the moment but don&#8217;t know whether I am ill or not, it is sort of lurking!</p>

<p>I felt funny Monday 8th Dec in the morning and then ok a bit later so had lots of early nights last week and still had a little bit of a funny feeling but not as much as earlier in the week. Then saturday 13th had a big family gathering, so drinking wine, and a late night so had an early night on sunday and felt funny on monday morning but that eased off as the day went on. Tuesday 16th felt a little weird but not as much as monday in the morning and then ok on the evening and later in the week I felt a little funny, but more tired! Had a night where I couldn&#8217;t sleep properly for worrying! </p>

<p>Since then it has been coming in waves and felt really bad when I was in the supermarket on saturday and had to get home but then sunday was a bit funny on the morning and then fine later on! Still lurking now as feeling a bit funny but still in work!</p>

<p>Not sure what is going on, as it normally would have got progressively worse - but it cannot seem to make up it&#8217;s mind! Really hope it is not an episode as I have (fingers crossed, touch wood etc etc) never been ill at Christmas! </p>

<p>Anybody else get this?!It is the most random it has ever been and not just decided to get on with enjoying the christmas period and not let it get on top of me! Stupid KLS! </p>

<p>Nat<br />
xxx
</p>
      ]]>
      </content>
    </entry>

    <entry>
      <title>do you leave the house during episodes or recoveries&#63;</title>
      <link rel="alternate" type="text/html" href="http://klsfoundation.org/kleine/forums/viewthread/66/" />      
      <id>tag:klsfoundation.org,2008:kleine/forums/viewthread/.66</id>
      <published>2008-09-15T11:52:18Z</published>
      <updated></updated>
      <author><name>scorpio_vette</name></author>
      <content type="html">
      <![CDATA[
        <p>i was wondering if any of you leave the house during episodes or recoveries???</p>

<p>when i have my episodes i won&#8217;t leave the bedroom. then when i start to recover<br />
i start slowly moving on to the living room. then towards the end of the recovery i start<br />
sneaking out into the backyard very very late at night in the protection of darkness when <br />
the chances of being seen by people is very low.&nbsp;  &nbsp; then i gradually start sneaking out onto the back steps during the day if i don&#8217;t <br />
see or hear anybody outside.</p>

<p>then eventually i&#8217;ll go on car rides with my wife.</p>

<p>but i don&#8217;t go out by myself until i&#8217;m completely &#8220;normal&#8221; again.</p>

<p><br />
do others act like that, or do you still go out during episodes/recoveries???</p>

<p>do some of you also become afraid to be around other people during episodes/recoveries???</p>

<p>how do you deal with it???&nbsp;  i&#8217;m always so afraid because i can&#8217;t tell if somebody is talking to me or if i&#8217;m just imagining it. or<br />
i can&#8217;t tell if i&#8217;m actually saying something, or if i was just thinking about saying something but didn&#8217;t say anything. i can&#8217;t<br />
tell if what i&#8217;m seeing is real or if i&#8217;m making it up, or if what i&#8217;m hearing is real or if i&#8217;m hearing something else.&nbsp; it&#8217;s so hard<br />
to tell what&#8217;s really going on.</p>



<p>oh and my wife discovered that during my recoveries i&#8217;m absolutely horrified of uniforms.&nbsp;  she said anytime i see a uniform i panic and go back to bed.&nbsp; apparently one time during one of my recoveries  i asked her to go for a walk with me very late one evening after it was dark. but once i got to the door i saw an ambulance outside paniked and went back to bed.
</p>
      ]]>
      </content>
    </entry>

    <entry>
      <title>Families interested in possibly having a national gathering</title>
      <link rel="alternate" type="text/html" href="http://klsfoundation.org/kleine/forums/viewthread/73/" />      
      <id>tag:klsfoundation.org,2008:kleine/forums/viewthread/.73</id>
      <published>2008-10-23T19:56:35Z</published>
      <updated></updated>
      <author><name>bozo1</name></author>
      <content type="html">
      <![CDATA[
        <p>We are presently walking through a very difficult episode with our son Max.&nbsp; He is in an extremely deep hibernation. As always it is so heart wrenching to see him suffer.&nbsp; This is his ninth episode since he began last December.</p>

<p>This morning I met with our ESE coordinator at the high school where I teach. Carol is awesome and the best ESE coordinator in our district&#8230;..&nbsp; as I wept in her arms I left her office with a new determination.</p>

<p>I am writing to see if any of you would be interested in possibly exploring the possibility of somehow organizing a national workshop to meet other families around the country with children with KLS.&nbsp; This would enable us to learn from one another and form a support group, be trained on how to advocate for our children in the school system, learn how to advocate within our communities where we live as well as get media coverage to spread the word to the medical community as well as school administrators, teachers, guidance counselors, district level nurses, pyschologists etc., fund raising ideas for research, workshops for our children to meet others with KLS&#8230;.and on the list could continue.&nbsp; Support groups are excellent tools to help encourage one another.</p>

<p>I realize all of our lives are extremely busy and that our children&#8217;s cycles are unpredictable.&nbsp; I do know that I tell my high school students all the time that &#8220;knowledge is power&#8221; and you must be tenacious to go forward to achieve your dreams no matter what obstacles you may face.&nbsp; We all are keenly aware that our children have a new stumbling block ....but it does not mean that their dreams have to be stolen. We cannot give up and can learn so much from one another.</p>

<p>Raising money for further research is a critical piece for the sake of all our children and other families who walked through the parade of doctors and unecssary tests, scans, drugs etc.</p>

<p>I have no idea how this could come about&#8230;but if there is enough interest that will be the beginning.&nbsp; </p>

<p>I wish you all the best and am in great hope that we can all begin to consider a way to make this happen.</p>

<p><br />
Gail in Florida
</p>
      ]]>
      </content>
    </entry>

    <entry>
      <title>Headaches</title>
      <link rel="alternate" type="text/html" href="http://klsfoundation.org/kleine/forums/viewthread/17/" />      
      <id>tag:klsfoundation.org,2007:kleine/forums/viewthread/.17</id>
      <published>2007-10-26T11:05:20Z</published>
      <updated></updated>
      <author><name>davidchandrika</name></author>
      <content type="html">
      <![CDATA[
        <p>My husband is currently having an extended episode but he has been complaining of continual headaches during this episode. It is currently up to  26 days and we wondered if other KLS sufferers experience headaches during their episodes or if this is unusual?<br />
-C
</p>
      ]]>
      </content>
    </entry>


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