KLS Foundation Discussion Forum

Homeopathy

2009-06-24T07:07:19-08:00

My daughter has had KLS for the last 4 years. We were lucky that the school noticed her bizarre behaviour and referred her to a behaviour clinic who then referred her to a neurologist who had experience with KLS. It has been a hard 4 years but I am hoping the episodes are over.

I’ve been training to be a homeopath for a few years and had tried to use homeopathy to help. Often it would, but only to “push” the episode later rather then end it completely. The two most useful remedies for my daughter were Conium Maculatum 30 ch and Cannibis Indica 200 ch. The cannibis remedy is hard to get as the raw material is restricted. For anyone who doesn’t understand homeopathy, the raw material is processed into a tincture and then is diluted over and over and shaken to extract the energy signature. Thus even the cannibis remedy has no ability to make one high, and the conium one can’t poison you.

The breakthrough happened when I commented on my online study group and a homeopath in the US suggested using the sarcode (homeopathics made from healthy glandular tissue) Hypothalmus. Due to the Stanford studies we figured that regulating the hypothalmus might help. These remedies are hard to get, I was able to purchase it from Aaronson’s Pharmacy in Vancouver. We chose a 9ch which is regulatory to the hypothalmus. This was 10 months ago and my daughter has been episode free.

Originally her episodes were one week of every month, they they stretched out to three months between episodes but the episodes would then be 3 weeks long. Her longest being 22 days on my couch. It may well be that she just outgrew it, but I’m hoping not.

If anyone wishes to try homeopathics, please visit a homeopath. Unlike regular medicines the homeopath needs to do an assessment to decide which remedy is right and often there are cases where another remedy must be given first to allow the right remedy to work. Otherwise, just trying it yourself may give good results or may do nothing.

I just wanted to share our good fortune with homeopathics. I really think it is the best way for really complex disease.
Theresa

KLS and pregnancy

2011-08-24T15:20:59-08:00

This may have already been discussed. However, given the number of young women who have been diagnosed with KLS, its affect on pregnancy seems a reasonable topic of research. I have had three successful pregnancies with no symptoms of KLS (two during a period of remission). If KLS were mainly hormonal, one might expect some kind of KLS activity. I spoke with one other young woman diagnosed with KLS who said she did not experience any KLS symptoms during her pregnancy either. (I know, this is a very small sample based on anecdotal “evidence”). Of course, I experienced all of the “pickle” cravings, which I understand are a result of the pregnant body craving salt in order to stimulate an increase in blood supply to support the fetus. Would an increased blood supply “ward off” any diminishment of blood circulating in the brain of the pregnant female? Would hormones contained in the blood of pregnant women also enhance the network of blood vessels guaranteeing that all of the body’s blood vessels are prepared to accept blood? What protects an average pregnant woman from deadly increases in blood pressure? I’m sure the idea of blood transfusions during KLS episodes has been theoretically discussed. However, it’s intriguing to wonder if carefully administered “transfusions” of donated blood from pregnant women (or laboratory created facsimile) would stop or protect against KLS? I’m sorry this reads like a cheap horror novel, but I don’t know how else to ask these questions.

DSM V

2010-02-23T14:07:57-08:00

Where or how does KLS fit into the discussion on the new DSM V? For example, can a dr. or mental health professional find a description of KLS in the most consulted document of that profession? Can anyone provide information or a meaningful link regarding the update of this powerful tool which in the end determines how billions of dollars are spent on such “items” as medications, treatments, etc. and determines basically whether or not a specific condition is disabling (I’m sure there is much more, but I am not an expert). Thanks.

Xyrem

2009-02-09T09:21:09-08:00

I wondered if Xyrem was every considered or tried.