Hi Everyone,

I just wanted to share with you some KLS groups that have been formed on facebook. These groups are great ways to stay connected with the KLS community and to raise awareness for KLS. Please join them if you have a facebook. Here are the links:

http://www.facebook.com/#/group.php?gid=47093717831&ref=ts

http://www.facebook.com/#/group.php?gid=2475711743&ref=ts

http://www.facebook.com/#/group.php?gid=106441131749&ref=search&sid=100000550846663.3183414010..1  -(this is an Australian group for KLS sufferers)

Thanks!
-AW

I have set one up for people in the UK too.  Can be found here:

http://www.facebook.com/group.php?gid=309268611741&ref=nf

As Alanna said it is so helpful to network and know you aren’t going through it alone! xx

Hi Everyone
We have a Facebook group which can only be accessed via a friend who is a member too. Alanna and I are members (I am the administrator). It is called KLS Confidants. I am found under -Annette Robinson (Netty Alderman). Please make contact if you would like to join.

This is the group information-
Hi folks. Welcome to KLS confidants. I have set this group up for those diagnosed with Kleine Levin Syndrome, and those who care for, or live with them. A ‘secret’ group so that we may talk in confidence about symptoms, medication etc. It would be great to reach the wider KLS community so please add your KLS contacts. It would be so good to be able to find the 40 or so people in the UK and others from around the world. Wishing you all well.
Annette (Mum of KLS son)