My name is Sean and I was diagnosed with KLS about 7 months ago. I just turned 40 years old last December. I have been suffering from this condition since I was 15 to 16 years old. I was married for 16 years and have 3 beautiful kids. Through all of this my marriage has failed and I live somewhat of a unstable life. Being 40 years old and having KLS is extremely difficult. Just trying to hold down a job but also trying to help people that are in your daily life understand what you are going through. I have had a long haul of experiences with people accusing me of being everything from an alcoholic, drug addict or just lazy. If it was at all possible I would like to some day share my experiences on a nation-wide if not world-wide network like the media to possibly help others suffering from KLS. I have been on many different medications from many different doctors who couldn’t figure out my condition and I was continuously misdiagnosed. Most recently I’m taking Ritalin and I’m not sure if it is working.
I just woke up from a 2 week episode today. It is terrifying not knowing if your job is still there, the extra added pressure that I put on fellow employees who have to cover for me.
I really need help and I hope by writing this information about myself that someone might read this and have some answers to help me find a cure or at least some type of medication that will slow down or totally eliminate these episodes.