Hello, 
My 17 year old son was recently diagnosed with KLS .  He has actually had it for 8 years now, so this has been a long, difficult journey for us.  For years, his doctors thought it was depression, but he didn’t respond to numerous anti-depressants.  Finally, I was the one who requested a sleep study , and it showed some abnormalities.  They then repeated the polysomnogram, followed by an MSLT test . He went into REM sleep on three of five tests, and his average sleep latency was 4.3 minutes so he was given a diagnosis of narcolepsy based on his MSLT test.  We thought we had finally found an answer, although I never felt that narcolepsy symptoms fit him.  He was treated with NUMEROUS stimulant medications, but my son kept saying he maybe felt a little more awake, but he didn’t feel any better.  His sleep medicine doctor, whom I adore, kept saying,” we’re missing something here, there’s something else going on”.  My son actually got worse, and went into what ended up being a five month episode!!  In August last year, I heard the words Kleine-Levin syndrome for the first time.  His doctor gave me a 17 page article to read on KLS.  I was shocked, and terrified when I read it because I knew I was reading about MY OWN SON!!  We ended up taking him to Mayo Clinic , Rochester, more or less to get another opinion, and after two visits, he did get a diagnosis of Kleine-Levin syndrome. I really have to give the credit to my son’s doctor here in Missoula, Montana.  He has been amazing, and I truely don’t know where we’d be without him.