My first post- My 15 year old son shows symptoms consistent with KLS. He’s been out of school for nearly 6 months, has had the gamete of tests including sleep studies, eegs, mris, and blood tests. He has been sleeping 13 to 18 hours each day.

We saw a top neurologist in Kaiser who would only give a diagnosis of hypersomnia and wouldn’t acknowledge my son’s altered personality episodes (his impaired concentration, childlike voice, altered mental processing-he was in Alg II Trig Honors but can barely do basic math in his sleepy state). 

We have been in touch with UCLA medical, but they say they don’t have any one knowledgeable about KLS.  My son’s longest sleepy state was 73 days; then he snapped out of it for one day, back in it for 10, woke for 1, back in it for 6, and Hallelujah, today snapped out of it again.  We hope and pray he will stay fully awake now. Thank you for any response. It is great to have others to share with.

Again, my request is for the name of a physician in southern California knowledgeable of or specializing in KLS.  We are near diamond bar, ca. and are willing to go to Stanford even if we must. Thank you.

To David’s Family,

  I am so very sorry your son has had such lengthy episodes.  My son, Eric is now 19 and has battled KLS since he was age 11.  He too was in honors classes in junior high but had to drop them due to KLS.  I live in Brea, the city next to you.  Please feel free to contact me by my email or cell phone at any time.  My son was diagnosed by Dr. David Paltin a psychologist in Orange.  Eric now see a regular MD who has been learning about KLS through Eric and me.  There is not a doctor that I am aware of in this area who is very knowledgable in KLS.  I hope you contact me soon!
Lori Haller, mom of Eric who has KLS
cell:  714-394-9817
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