My husband is 33 and has been dealing with KLS for 18 years. Everything I’ve read indicates that he should be finished with it, but it only seems to be getting worse lately (he just dropped into an episode yesterday, his last episode was 2 months ago, one 6 months prior, and a year prior to that). Our lives are basically put on hold during each of his episodes (children miss school, the house goes to ruins, and I’m running around in a frantic rush to get things done), and it’s really starting to wear us down. I’ve done everything I can to find a doctor who either can help or is at least willing to try, but can’t even get anyone to return my phone calls. Not that it’d help without any type of medication, of course. Maybe I just want someone to give us some kind of answers that we might not already have. Maybe I just want my family and friends to understand what we’re going through. It’s not like anyone would understand if I just started crying in their arms because my husband is ‘sick’. I know if I didn’t understand this the way I do, I’d think the person was crazy. Really.
So for now I guess I’ll have to settle for crying into my keyboard, knowing all of you can empathize.
Anyway, thanks for listening. I’ll return the favor whenever I can:)
