Our son is 18 and a freshman in college 3 hours away from home.  Prior to starting his starting this academic year, Eli had had 3 KLS episodes, each lasting 10 days - 2 weeks, each 7 months from the previous episode.  Lacking local resources, when we began to suspect KLS, we found a physician in NYC through the KLS website.  During Eli’s third episode we contacted the NYC physician.  He met with him, and ordered a 48 hour EEG during the episode at the end of June/beginning of July 2010. Post-episode, Eli then participated in a 36 hour sleep study and a thorough neuro-psych eval through NYU.  The neuorolgist who conducted the sleep studies confirmed the KLS diagnosis, saying “it doesn’t fit any other diagnosis, so it must be KLS.”  We met with the NYU physician for a consult at the end of the battery of testing.  At that time, our son was about one week away from the beginning of his freshman year in college.  The physician recommended he start Amantadine; he also recommended we sit down with his freshman roommate, at that time a stranger to our son, and tell him about KLS—collectively, we decided to do neither of those things.  Eli would not have had time to achieve the therapeutic dosage of Amantadine while he was still at home; the physician indicated that it was effective in about 1/3 of KLS cases to forestall episodes or diminish symptoms and Amantadine has side effects which could exacerbate ADHD symptoms and Eli was off to a totally new environment.  As for presenting KLS to Eli’s roommate—what a way to start a new relationship!  We did notify the Dean responsible for first year students and the Dean responsible for academic accomodations, as well as the medical director and the counseling office of the KLS diagnosis (and what we already knew about an ADHD diagnosis).  Because our son has not consistently been able to identify that an episode is starting, we were concerned about what would happen in the event that he would experience the onset of a KLS episode while at school.  We also wanted to support his right to privacy and his independence.  Quite a bind!  College counseling and Medical Director suggested working with Res Life to inform the RA to notify the College medical director in the event that Eli was “sleeping excessively.”  Frankly, all of us were banking on the every 7 month pattern (or no further KLS episodes), which would have carried us into Winter Break.  No such luck!  2 1/2 weeks after Eli started school, KLS came back.  Fortunately, this time, Eli had a sense it was starting.  Much to his credit, he had also spoken to his roommate and a few friends, telling them about KLS.  He contacted us, made contact with the campus Medical Director, who then contacted us, himself.  We were able to bring Eli home for a week.  Not exactly the way any of us would have wished for a start to a college career, for sure.  We would love to hear of others’ experiences regarding KLS and how it does (and doesn’t) mix well with major life changes.