Earlier this summer during a business trip to the UK I talked in person with a local television producer who was doing research into a science series to be produced for British television, looking into rare and extraordinary neurological conditions, including KLS.  The aim of the series is to take a serious, in-depth look into a wide range of these unusual syndromes, bringing them into the public’s consciousness through the life-stories of sufferers and the testimony from doctors and specialists.  This type of program is in line with the Foundation’s mission to raise awareness of KLS generally and specifically in the medical community.

The documentary series including up to an hour on KLS has been funded and is moving into the production phase.  The producers are currently looking for patients and families to talk with, especially anyone located in the UK.  In addition they are hoping to have someone agree to be filmed during an episode.  As a KLS patient (although I have been episode free for the last 6 year) I know that being filmed in an episode is not at the top of anyone’s list but from a video documentary perspective it does provide a more compelling story. 

If you are interested in more information or interested in speaking with the producers please contact the foundation or you can contact Sam Campbell who is heading up the KLS portion of the documentary at “Campbell \(LWT\), Sam” .(JavaScript must be enabled to view this email address).