Kleine Levin Syndrome Foundation
Doctors Familiar with KLS
This list is provided solely as an aid to those seeking physicians familiar with Kleine-Levin Syndrome. These physicians’ names were given to us by other KLS patients. It does not imply an endorsement in any way by the KLS Foundation.
You may want to use this list as a starting point for your search for a doctor. Finding a doctor or other health professional that is right for you is a personal process than can take time. It is important to find someone you feel you can speak with openly and honestly, and even if they don’t initially know much about your condition, someone who will take the time and have the interest to study and learn about it.
As you search for a health care professional, keep in mind that you have a right to expect certain things, no matter who you are, what challenges you are facing, or how much money you have. You have a right to:
· Privacy, confidentiality and respect
· Sensitivity to your needs and background
· An explanation of the treatment you are receiving and why
· Freedom to express yourself
United States
ALABAMA
Dr. McDanough
Hilands Medical Center
Jackson County Hospital Sleep Center
Scottsboro, Alabama
Tel: 256-259-4444
CALIFORNIA
Emmanuel Mignot, M.D., PhD
Stanford University Center of Narcolepsy
Dept. of Psychiatry
1201 Welch Road
Stanford, CA 94305-5485
Tel: 650-725-6517
Note: Dr. Mignot heads the KLS Foundation research program.
Dr. Milton Erman or Dr. Merrill Mitler
Scrips Pacific Sleep Medical Services
9834 Genessee Avenue, #328
La Jolla, CA 92037
Tel: 858-657-0550
UCLA Sleep Disorder Center
Santa Monica, CA
Tel: 310-319-4062
Dr. Sydney C. Choslovsky
65 N. 14th St.
San Jose, CA
Tel: 408-279-1400
Christian Guilleminault, M.D.
Stanford Health Services
Sleep Disorder Clinic
401 Quarry Road – Suite 3301
Stanford, CA 94305
Tel: 650-723-6601
David Paltin, Ph.D.
Psychologist
173-B N. Glassell
Orange, CA 92866
Tel: 714-796-1752
Dr. William Hitchcock
La Jolla Pediatrics
4150 Regents Park Row #215
La Jolla, CA 92037
HAWAII
Dr. Ye Hsia (assistant: Janet Brumblay)
Kapiolani Genetics
319 Punahou Street – Suite 530
Honolulu, Hawaii 96826
Tel: 1-800-983-6472
MASSACHUSETTS
Allan Ropper, M.D.
Joshua D. Katz, M.D.
St. Elizabeth’s Medical Center
Department of Neurology
736 Cambridge Street
Boston, MA 02135-2997
Thomas Scammell, M.D.
Beth Israel Boston Sleep Disorder Center
330 Brookline Avenue
Boston, MA 02215
Tel: 617-667-0833/617-667-3237
Norman P. Spack, M.D.
Clinical Director, Endocrine Division
Children’s Hospital Boston
Dept of Endocrinology
Harvard Medical School
300 Longwood Avenue
Boston, MA 02115
Joel Herskowitz, M.D.
New England Medical Center -
Floating HospitalDivision of Pediatric Neurology
750 Washington Street
Boston, MA 02111
Tel: 508 879-7532
MINNESOTA
Dr. Mark Mahowald, MD (Director)
Dr. Laurel Wills, MD (Staff Physician)
Hennepin County Medical Center
Minnesota Regional Sleep Disorders Center
701 Park Avenue
Minneapolis, MN 55412
Dr. Michael Silber
Sleep Disorder Center, Mayo Clinic
Rochester, MN
MISSOURI
St. Louis Sleep Center
Dr. Nau
NEW JERSEY
Dr. Michael D. Merkin
34-36 Progress Street, B-3
Edison, NJ 08820
Tele: 908-757-6633
NEW YORK
Orrin Devinsky, MD
Professor of Neurology, Neurosurgery, and Psychiatry
Department of Neurology
New York University School of Medicine
223 East 34 Street
New York, New York 10016
Tel: 646-558-0803
Edwin H. Kolodny, M.D.
Professor and Chairman
Dept. of Neurology
New York University Medical Center
550 First Avenue
New York, NY 10016
Dr. Michael J. Thorpy M.D.
Montefiore Medical Center
The University Hospital for the Albert Einstein College of Medicine
111 East 210th Street
Bronx, NY 10467-2490
Tel: 718-920-4841
Dr. Gary Zammit
Sleep Disorders Institute
1090 Amsterdam Avenue17th Floor
New York, New York
NORTH CAROLINA
Anne-Marie Turnier, MD
Apex Child, Adolescent & Adult Psychiatry, P.A.
108 B North Salem St.
Suite 203
Apex, NC 27502
Tel: 919-632-2803
Fax: 919-363-9927
OHIO
Dr. Bruce Cohen
Cleveland Clinic
Cleveland, OH
Dr. Derrick Lonsdale
Cleveland
Dr. Maxwell Wiznitzer
Cleveland Rainbow Babies
PENNSYLVANIA
Dr. Ronald E. Dahl
University of Pittsburg Medical Center
Tel: 412-624-1810
TENNESSEE
Dr. Schoumacher
Director of the Sleep Clinic for LeBonhaur Children’s Hospital
Memphis, TN
His assistant is Linda
Tel: 901-572-3337
Dr. Robin Morgan
UT Medical Group
Division of Pediatric Neurology
LeBonheur Children’s Medical Center
Memphis, TN
Clinic: 901-287-5060
Appt: 901-448-2000
TEXAS
Dr. Don Glaze
Houston
Tel: 713-790-3105
Todd J. Swick, M.D, P. A.
F. A. A. N.
Diplomate, American Board of Sleep Medicine
Sleep Wake Disorders Neurology
8333 Freeway, Suite 102
Houston, TX 77024
Tel: 713-465-9282
Fax: 713-465-9248
Dr. Alex d’Cruz
5120 29th Drive, Suite D
Lubbock, TX 79407
Tel: 806-281-9999
Fax: 806-281-9900
Dr. David Ostransky
2801 S. Hulen Street, Suite 600
Fort Worth, TX 76109
Tel: 817-731-7046
WASHINGTON
Katherine Brown, MD
Polyclinic Downtown
509 Olive Way - Suite 900
Seattle, WA 98101
Office phone 206-860-4700
Office Fax 206-624-9520
Board Certified by American Board of Family Medicine
Practice includes care of all age ranges, from infancy through adulthood.
http://www.polyclinic.com.
Dr. Jon Kooiker
Olympia Neurology
Olympia, WA
International
BELGIUM
Professor Paul Linkowski
ULB - Universite Libre de Bruxelles
Hôpital ERASME
Unité métabolique de psychiâtrie
Laboratoire de sommeil
Route de Lennik, 808
B-1070 BRUSSELS
BELGIUM
tél : +32 2 555 32 21
fax : +32 2 555 69 55
e-mail : .(JavaScript must be enabled to view this email address)
Website: http://www.ulb.ac.be/erasme/
Doctor Pierre Fossion
ULB - Universite Libre de Bruxelles
Hôpital CHU Brugmann
Psychiâtrie
Place Van Gehuchten, 4
B-1020 BRUSSELS
BELGIUM
tél : +32 2 477 22 78
e-mail : .(JavaScript must be enabled to view this email address)
website : http://www.chu-brugmann.be
Professeur Olivier Van Reeth
Hôpital ERASME
Centre d’Etudes des Ryhtmes Biologiques (CERB)
ULB - Université Libre de Bruxelles
CP618, route de Lennik, 808
B-1070 BRUSSELS
BELGIUM
tél : +32 2 555 32 21
fax : +32 2 555 69 55
e-mail : .(JavaScript must be enabled to view this email address)
http://www.ulb.ac.be/erasme/
CANADA
Dr. Peter Camfield
IWK Health Centre
Pediatric Neurology
Dartmouth, Nova Scotia
Canada
902-470-8471
Brian Murray MD
Neurology and Sleep Medicine
Womens Colelge Campus
Burton Hall, Room 41860
Grofvenor Street
Toronto, Ontario
Canada M5F1B2
Telephone: 416-323-6486
Dr. Joseph Barbera MD, FRCPC, D, ABSM
Toronto Western Hospital
750 Dundas St. West, Suite 259
Box 22
Toronto, Ontario
Canada M6J 3S3
Phone: 416-603-5800
Fax: 416-603-5360
ENGLAND
Professor David Nutt
Psychopharmacology Unit
School of Medical Science
University of Bristol
Bristol BS81TD, England
Tel: 011-44 117 928 9000
Dr. Pelts
Amptil Medical Centre
Eversholt Street
London, England
FRANCE
Isabelle Arnulf, MD, PhD
Fédération des pathologie du Sommeil
Hôpital Pitié-Salpêtrière
47-83 Boulevard de l’Hôpital
75013 Paris, France
IRELAND
Dr. Noel Clancy
Eden Bawn Navan Rd
Trim
CoMeath
Ireland
ISRAEL
Nathan Gadoth, M.D.
Department of Neurology
Mayanei Hayeshua Medical Center
Bnei Barak, IL
Tel: +972-3-5775455
Fax: +972-3-5775454
Email: .(JavaScript must be enabled to view this email address)
Peretz Lavie, PhD
Andre Ballard Chair in Biological Psychiatry
The Bruce Rappaport Faculty of Medicine
Technion - Israel Institute of Technology
Haifa 31096
(collaborates with Dr. Gadot)
Yakov Sivan, MD
Director
Institute of Pediatric Pulmonology
Critical Care and Sleep Medicine
Dana Children’s Hospital
Tel Aviv Medical Center
Tel: +972-3-697-4614