KLS in the Media
Kaitlyn Terrana’s KLS Story
October 9, 2012, Huffington Post
When Ontario teenager Kaitlyn Terrana is having one of her episodes, she can sleep for 20 hours a day, 10 days at a time.
That’s because Terrana has Kleine-Levin Syndrome—
KLS - Article ABC news Feb. 27, 2012
February 27, 2012, ABCNews.com
I missed Christmas and my birthday when I fell asleep for six months
November 15, 2011, by Lauren Taylor, Daily Mirror 15/11/2011
It should have been the best time of her life, starting ¬college, making new friends and hanging out with her ¬gorgeous new boyfriend. But this time last year, when Bethany-Rose Goodier went to bed and fell asleep, she didn’t wake up the next day. Or the day after that.
SLEEPING BEAUTY
January 31, 2010, News of the World
Pretty Louisa Ball is known to her family and friends as Sleeping Beauty… but there the fairytale ends.
KLS Run for Ryan set April 25
March 3, 2009, March 1, 2009 The Lancaster News by Robert Howey
The annual Run for Ryan is being held April 25 in Lancaster, South Carolina and will raise funds and awareness for KLS.
She lives “Your worst nightmare times 10”
December 25, 2008, West Seattle Herald; By Allison Espiritu
Consider falling asleep one night knowing you’re only 17 years old, but when you wake up, you’re two years older. To the average person this may be unimaginable, but for Alanna Wong, a former upcoming tennis star at West Seattle High School, it’s a nightmare turned reality. Alanna has spent almost nine years with a disorder that has plagued her once normal life and left years of her young existence a mystery.
KLS Featured on Discovery Health Channel on Monday, July 28th
September 9, 2008
Discovery Health Channel’s “Mystery ER” is presenting a program on KLS on Monday, July 28th at 5 p.m., 8 p.m. and 11 p.m. (eastern time). The show will feature Adam and the trials and tribulations his parents, Cindy and Paul endured in finding a diagnosis for their son. Please check your local listings to confirm the time it will air in your area.
Penney fights through illness to play at SHS
March 26, 2008, The Stoneham Independent, March 26, 2008
Imagine that you’re in the prime of your high school life and the picture of health: a talented hockey player and athlete, a hard-working student and someone well-liked and respected by your peers and your teachers.
Then in the blink of an eye,
KLS: A rare syndrome for which there is no known cure is affecting Ashkenazi families
November 14, 2007, San Diego Jewish World, November 14, 2007
Rip Van Winkle Disease
August 15, 2007, DISCOVER MAGAZINE Science, Technology and the Future
Newton Rallies Around Family Stricken with Rare Condition
March 29, 2007, The Jewish Advocate
Nightmare of the girl who can’t wake up for a week
February 26, 2007, Daily Mail (UK)
Sleeping Beauty Syndrome
November 28, 2006, Inside Edition
Syndrome Can Keep People Asleep for Weeks
November 7, 2006, Local 6 - Orlando, Florida (WKMG TV)
Weekly Reader/Altered State
October 20, 2006, Current Science
One page PDF file
Sleeping Away Their Youth
October 13, 2006, Cleveland Jewish News
Rare Illness Makes Some Reluctant Sleeping Beauties
September 20, 2006, CBS Chicago Affiliate
Lancaster Mother Glad to see More Focus on Rare Disorder
September 10, 2006, The Lancaster News
Medical Mystery: Sleeping Beauty Disorder
July 26, 2006, ABC News - Prime Time Medical Mysteries
An ABC television show on KLS with the Farber and Delein families.
Mother Hopes to Raise Awarness about Rare Disorder after Son’s Death
April 21, 2006, Lancaster News
Article in the Lancaster News regarding KLS and Ryan White, who died of a heart disorder.
The sleeping years
March 4, 2006, Orange County Register
A rare disorder keeps a Placentia teen in bed 20 hours a day, weeks at a time.
Kleine Levin Syndrome featured on CNN
December 29, 2005, CNN
Kleine Levin Syndrome (KLS) was featured on the nationally televised CNN show “Paula Zahn Now” and on CNN Headline News on December 29, 2005. The segment featured Eric, a very brave 15 year old, as he struggles with KLS. In addition, the segment featured Dr. Mignot fromStanford University who stated that he is interested in researching possible genetic factors associated with KLS. He further said that more research is needed to determine a definite cause for Kleine-Levin Syndrome.
Television show on KLS
April 19, 2001, CBS 48 Hours
Television Show on KLS
March 14, 2001, The Montel Williams Show
I Fell Asleep for 5 Months
November 27, 2000, Woman Magazine
Woman Magazine, London England
Television show on KLS
November 4, 2000, Northwest Afternoon Live, ABC Affiliate KOMO, Seattle, WA
The Sleeping Princess
October 17, 2000, NBC Dateline
Sleeping Beauties
October 2, 2000, Inside Edition
The Debra Duncan Show Live
September 6, 2000, Houston ABC affiliate KTRK
Television show dealt with the experiences of Kristie Brown and Stephen Maier with KLS.
The Woman Who Couldn’t Wake Up
September 1, 2000, Cosmopolitan Magazine
Cosmopolitan Magazine, September 2000 issue. To order a copy contact the Back Issue Dept. 1-800-925-0485
The “Rip Van Winkle” Sleep Disorder
May 11, 2000, Extra
Sleeping Beauty
February 28, 2000, Good Morning America
The KLS story of Claire O’Neill 17
Irish Examiner
This is the story of Claire O’Neill 17, who has pretty typical KLS episodes. Like may KLS sufferers the road to diagnosis was a difficult one. It describes the trails and tribulations of living with KLS very well. However, the reporter did get a few facts incorrectly. KLS does not affect mostly males. That was thought to be the case a while back but it is no longer the case.
Claire’s parents believe that she contracted KLS from Pandemrix (flu shot) two years ago. “We’re convinced of it. Prior to Claire getting the vaccine, we had a very healthy girl.” Be careful not to come to any conclusions from that. It may or may not be the case. We too had a perfectly healthy girl and then she got sick one day with what turned out to be the first of many KLS episodes. KLS suddenly appears, very often to children who have never been sick a day in their lives. The flu has actually triggered KLS episodes in some cases and most doctors encourage KLS teens to get the flu vaccine.
KLS ON ANDERSON COOPER
Fox News 3/26/12
KLS discussion on the Dr. OZ show April 19
The Dr. Oz show will focus on sleep disorders on April 19th. There will be a segment on KLS. The show airs on different channels and times in different cities. Please check your local listings or log onto the Dr. Oz website to see when it will air in your city.
CNBC Medical Mysteries
CNBC - The Big Idea with Donny Deutsch
CNBC aired a program on ‘Medical Mysteries’Wednesday, August 9 @ 10pm on The Big Idea with Donny Deutsch. He interviewed Dani and Varda Farber on KLS.
Sleeping Their Lives Away
ADVANCEforSleep.com
2001 article from Advance for Sleep.com, regardng Steve Maier and his experience with KLS.
Eric Haller’s experience with KLS.
Fox Affiliate TV Show, 2006
