KLS Foundation Blog

Birdies for Children KLS Charity Event – You Have a Chance to Win a Car!

Posted by on Jan 14, 2016 in Fundraisers | Comments Off on Birdies for Children KLS Charity Event – You Have a Chance to Win a Car!

Birdies for Children KLS Charity Event – You Have a Chance to Win a Car!

Dear KLS Community, We hope you are having a great start in the New Year! We have some important and exciting news to share with you. We have awarded a $36,456 grant to Dr. Emmanuel Mignot of Stanford University for research on “GWAS and Exome Sequencing in KLS.” This grant will be used to support studies including the further genotyping of individuals with KLS to confirm and extend initial lab findings. Another goal of the grant is a study to sequence the DNA of select KLS families. To learn more about the research, click here:...

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Important – Blood Sample Participants

Posted by on Jan 11, 2016 in KLS Research | Comments Off on Important – Blood Sample Participants

Important – Blood Sample Participants

We have been informed that the Stanford University KLS research group has sent out upon request approximately 30 blood sampling kits to participants in the KLS conference, but has not yet received any of them back.  A new KLS study is about to begin and it is very important to have these blood samples as soon as possible to be included in the study. We would also like to help by determining if there is an issue with people receiving or returning the kits.  If you were expecting a kit and did not receive one, or if you received one and have...

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KLS Foundation Awards Grant to Dr. Emmanuel Mignot for Genetic Research

Posted by on Jan 5, 2016 in KLS Research | Comments Off on KLS Foundation Awards Grant to Dr. Emmanuel Mignot for Genetic Research

KLS Foundation Awards Grant to Emmanuel Mignot of Stanford University for Genetic Research January 6, 2016 – The Kleine-Levin Syndrome (KLS) Foundation, a patient advocacy group promoting research and supporting families dealing with KLS, today announced that the KLS Foundation has awarded Professor Emmanuel Mignot of Stanford University (Palo Alto, California) a research grant to advance studies investigating the genetics of KLS. This grant will be used to support studies including the further genotyping of individuals with KLS to confirm...

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Welcome, KLS Kickoff, KLSF BOD introductions – Steve Maier, KLSF President

Posted by on Dec 2, 2015 in 2015 KLS Conference | Comments Off on Welcome, KLS Kickoff, KLSF BOD introductions – Steve Maier, KLSF President

Steve Maier, President of the KLS Foundation, kicks off the 2015 International Conference. See the PDF link and video below. PDF Link: KLS Foundation 2015 International Conference – Kickoff – Steve Maier KLSF President

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Kleine-Levin Syndrome Update 2015 – Professor Isabelle Arnulf PhD MD

Posted by on Dec 2, 2015 in 2015 KLS Conference | Comments Off on Kleine-Levin Syndrome Update 2015 – Professor Isabelle Arnulf PhD MD

Professor Isabelle Arnulf PhD MD, Keynote Speaker, provides a very comprehensive 2015 update on Kleine-Levin Syndrome to include: KLS diagnosis criteria, long episodes, brain functional imaging, long term cognitive functioning and treatments. See the PDF link and video below. PDF Link: Kleine-Levin Syndrome Update 2015 – Professor Isabelle Arnulf PhD MD ...

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KLS and Idiopathic Hypersomnia – Dr. David Rye, MD, Emory Clinic

Posted by on Dec 2, 2015 in 2015 KLS Conference | Comments Off on KLS and Idiopathic Hypersomnia – Dr. David Rye, MD, Emory Clinic

Dr. David Rye, MD, special guest speaker, gives a talk about his research concerning Hypersomnia Conditions. Subjects include Kleine-Levin Syndrome, Idiopathic Hypersomnia, and Narcolepsy. See video below.

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Running For Ryan Fundraiser – Ann Blackmon

Posted by on Dec 2, 2015 in 2015 KLS Conference | Comments Off on Running For Ryan Fundraiser – Ann Blackmon

Ann Blackmon, special guest speaker, presents a check to the KLS Foundation in memory of Ryan McKinney and shares about the Running For Ryan Fundraiser. See video below.

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Global KLS Research Update – Dani Farber

Posted by on Dec 2, 2015 in 2015 KLS Conference | Comments Off on Global KLS Research Update – Dani Farber

Dani Farber, KLS Foundation Board Member, presents a global research update on KLS. See the PDF link and video below. PDF Link: KLS Research Update – Dani Farber & Neil Farber PhD

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KLS Support UK – Caron Krieger

Posted by on Dec 2, 2015 in 2015 KLS Conference | Comments Off on KLS Support UK – Caron Krieger

Caron Krieger, KLS Foundation Board Member and Co-Founder of KLS Support UK, shares about how KLS Support UK came to be and it’s attained success. See the PDF link and video below. PDF Link: KLS Support UK – Caron Krieger KLSF BOD

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Social Security Disability Benefits – Sara G. Khaki

Posted by on Dec 2, 2015 in 2015 KLS Conference | Comments Off on Social Security Disability Benefits – Sara G. Khaki

Sara G. Khaki, Esq., speaks about Social Security Disability Benefits and gives tips. See the PDF link and video below. PDF Link: Social Security Disability Benefits – Sara G. Khaki Esq

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