Kleine-Levin Syndrome

KLS is a rare and complex neurological disorder characterized by recurring periods of excessive amounts of sleep, altered behavior, and a reduced understanding of the world where the patient becomes progressively drowsy and sleeps for most of the day and night, sometimes waking only to eat or use the bathroom.

One in a million people worldwide live with KLS

As a result there is very little incentive for researchers and pharmaceutical companies to invest in KLS research.

KLS Medical publications

Most published articles on KLS in the medical and scientific literature are reports of one or two KLS cases by an attending physician. While helpful in confirming and sometimes reporting new observations, these ‘case reports’ usually do not significantly contribute to a better understanding of KLS.

In the last few years, there have been a few more informative studies and review articles based on observations and conclusions from a larger cohort of KLS cases.

Read more

Doctors Familiar with KLS

Finding a doctor or other health professional that is right for you is a personal process that can take time.

It is important to find someone you feel you can speak with openly and honestly. Even if your doctor does not know much about is not initially familiar with Kleine-Levin Syndrome (KLS), a doctor that takes he or she should take the time to learn about it may be the right choice for your KLS care.

Read more

$405,426.29 Donated to KLS Research

KLS is a very rare syndrome with no known cause or cure. Our goals are to raise awareness, support scientific research, to find effective treatment and ultimately a cure for Kleine-Levin Syndrome.

Participate in the KLS Research Program

Blood samples from a new KLS patients are tremendously helpful.

KLS Medical publications

Most published articles on KLS in the medical and scientific literature are reports of one or two KLS cases by an attending physician. While helpful in confirming and sometimes reporting new observations, these ‘case reports’ usually do not significantly contribute to a better understanding of KLS.

In the last few years, there have been a few more informative studies and review articles based on observations and conclusions from a larger cohort of KLS cases.

Read more

Doctors Familiar with KLS

Finding a doctor or other health professional that is right for you is a personal process that can take time.

It is important to find someone you feel you can speak with openly and honestly. Even if your doctor does not know much about is not initially familiar with Kleine-Levin Syndrome (KLS), a doctor that takes he or she should take the time to learn about it may be the right choice for your KLS care. 

Read more

research & community

The KLS Foundation provides information and support to those diagnosed with KLS and their families. The Foundation exchanges information with patients and the medical community to help in the diagnosis and care of those affected by KLS, and supports research programs.

Foundation goals

• Fund medical research
• Increase physician awareness
• Provide information and support to patients and families
• Organize a KLS Conference

KLS Medical publications

Most published articles on KLS in the medical and scientific literature are reports of one or two KLS cases by an attending physician. While helpful in confirming and sometimes reporting new observations, these ‘case reports’ usually do not significantly contribute to a better understanding of KLS.

In the last few years, there have been a few more informative studies and review articles based on observations and conclusions from a larger cohort of KLS cases.

Read more

Doctors Familiar with KLS

Finding a doctor or other health professional that is right for you is a personal process that can take time.

It is important to find someone you feel you can speak with openly and honestly. Even if your doctor does not know much about is not initially familiar with Kleine-Levin Syndrome (KLS), a doctor that takes he or she should take the time to learn about it may be the right choice for your KLS care.

Read more

Please consider donating today!


Kleine-Levin Syndrome Foundation, Inc. is a 501(3)c non-profit organization and all contributions are tax deductible. All funds go directly to support KLS Foundation projects.

you can help those living with kls

Contributions from individuals assist in maintaining the ongoing success of the KLS Foundation’s efforts to educate, support and find a cure for KLS.

KLS Medical publications

Most published articles on KLS in the medical and scientific literature are reports of one or two KLS cases by an attending physician. While helpful in confirming and sometimes reporting new observations, these ‘case reports’ usually do not significantly contribute to a better understanding of KLS.

In the last few years, there have been a few more informative studies and review articles based on observations and conclusions from a larger cohort of KLS cases.

Read more

Doctors Familiar with KLS

Finding a doctor or other health professional that is right for you is a personal process that can take time.

It is important to find someone you feel you can speak with openly and honestly. Even if your doctor does not know much about is not initially familiar with Kleine-Levin Syndrome (KLS), a doctor that takes he or she should take the time to learn about it may be the right choice for your KLS care. 

Read more

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