KLS is a mysterious illness. It’s our job to take some of the mystery out of it.
We are an all-volunteer organization of KLS patients and their families founded in 1999 by two sets of parents whose children had KLS.


The mission of the Kleine-Levin Syndrome Foundation is to build awareness of KLS, help doctors understand the complexities of KLS, support our community of KLS patients and caregivers, promote patient and caregiver advocacy, and drive the search for a cause and a cure for KLS.

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