Advisory Board

Meet the KLS Foundation Advisory Board


Donna White, Mother of Ryan McKinney

Donna’s son Ryan was misdiagnosed for a period of over seven years. As a result of medication prescribed before he received a diagnosis of KLS,  Ryan suffered a heart attack and died on February 17, 2006. Ryan’s death sparked Donna’s mission to raise the level of KLS awareness in hopes that other children would not continue to suffer from this devastating disorder. In 2007, the first annual “Walking for Ryan Festival” was held in South Carolina and raised nearly $10,000 for KLS research. Donna is an English as a second language instructor/Bilingual Spanish Translator for the Lancaster County School District and Founder of the South Carolina Chapter of Kleine Levin Syndrome at Lancaster, SC. Email: donna@klsfoundation.org

 

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