Board of Directors

KLS Foundation Board of Directors

Stephen Maier, CPA – President

Stephen is a certified public accountant and partner at Ernst & Young LLP. He has a BS in Accounting from Santa Clara University. He was diagnosed in 1990 with KLS, two years after his first episode and has been episode free since September 2001. Email:

Richard B. Maier, CPA – Chief Financial Officer

Richard has a BS in Accounting from San Jose State University. He has been a CPA for over 25 years as a sole practitioner. Richard is a QuickBooks Pro Advisor and has taught QuickBooks classes in many locations. He was active in youth sports when his children were in school. Email:

Lucinda Maier, Founder, Support Chairperson

Lucinda is the mother of Stephen Maier. In an effort to contact others with KLS, she put up the first website on Kleine-Levin Syndrome when her son Stephen was diagnosed with KLS. She and her husband Richard incorporated the KLS Foundation as a non-profit organization in 1999. Email:

Varda Farber, Fundraising Chairperson

Varda is the mother of two adult children who had KLS for many years and is a founding Board member. She is a veteran teacher and educator. She holds a BA in psychology and education and graduate degrees in Religious Education. Varda has held numerous leadership roles in local and national non-profit organizations and spearheaded the KLS Foundations fundraising efforts. Email:

Lori Haller Schiller, Media Chairperson

Mother of Eric Haller who was diagnosed with KLS in 2004. Eric has been featured on Los Angeles newscasts and CNN News to help bring awareness to the public about KLS. Lori is a Physical Education teacher for the Placentia Yorba Linda School District and a very involved parent with the PTA and city issues regarding children. Email:

Dani Farber, Secretary

Dani is an equity trader in NYC.  He graduated from the University of Maryland with a BS in Finance and Marketing. He was diagnosed with KLS in 1995 at the age of 15 and suffered 17 episodes. Inspired by his parents dedication to the KLS Foundation, Dani joined the board of the KLS Foundation in 2006. Email:

Caron Krieger – United Kingdom

Caron is the mother of Ben who was diagnosed with KLS in 2010.  She has a BA in law from the University of Cambridge and worked as a media lawyer.  She is a governor of Fairley House, a school for specific learning difficulties.  Together with other parents she set up KLS Support UK  in 2011. Email:

Alanna Wong, Social Media Manager

Alanna has spent the past six years dedicating her life to raising awareness for Kleine-Levin Syndrome (KLS) in an effort to help other sufferers. Alanna’s focus has been to raise funds for research, engage and connect with the community, and facilitate the KLS Foundation website. Alanna has created the You Belong Community and is writing her KLS memoir. She also works independently as an entrepreneur and Social Media Manager for other organizations. Email:

If you are interested in learning more about how you can become involved in the KLS Foundation, please contact us here

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