Board of Directors

KLS Foundation Board of Directors


Stephen Maier, CPA – President

Stephen is a certified public accountant and partner at Ernst & Young LLP. He has a BS in Accounting from Santa Clara University. He was diagnosed in 1990 with KLS, two years after his first episode and has been episode free since September 2001. Email: steve@klsfoundation.org

Richard B. Maier, CPA – Chief Financial Officer

Richard has a BS in Accounting from San Jose State University. He has been a CPA for over 25 years as a sole practitioner. Richard is a QuickBooks Pro Advisor and has taught QuickBooks classes in many locations. He was active in youth sports when his children were in school. Email: richard@klsfoundation.org

Lucinda Maier, Founder, Support Chairperson

Lucinda is the mother of Stephen Maier. In an effort to contact others with KLS, she put up the first website on Kleine-Levin Syndrome when her son Stephen was diagnosed with KLS. She and her husband Richard incorporated the KLS Foundation as a non-profit organization in 1999. Email: lucinda@klsfoundation.org

Neal Farber, PHD – Research Coordinator

Neal is a molecular biologist and has over 25 years experience in the biotech industry in research, product development and company building. Neal is currently CEO of NeuroHealing Pharmaceuticals, whose mission is to improve the neurorehabilitation process and functional outcome for patients who have suffered brain injuries. Neal was a Helen Hay Whitney Research Fellow at Harvard University, received his PhD (Hammett Award) from Columbia University and a BSc in Chemistry and Biochemistry from the Hebrew University in Jerusalem. Email: neal@klsfoundation.org

Varda Farber, Fundraising Chairperson

Varda is the mother of two adult children who had KLS for many years and is a founding Board member. She is a veteran teacher and educator. She holds a BA in psychology and education and graduate degrees in Religious Education. Varda has held numerous leadership roles in local and national non-profit organizations and spearheaded the KLS Foundations fundraising efforts. Email: varda@klsfoundation.org

Lori Haller Schiller, Media Chairperson

Mother of Eric Haller who was diagnosed with KLS in 2004. Eric has been featured on Los Angeles newscasts and CNN News to help bring awareness to the public about KLS. Lori is a Physical Education teacher for the Placentia Yorba Linda School District and a very involved parent with the PTA and city issues regarding children. Email: lori@klsfoundation.org

Dani Farber, Secretary

Dani is an equity trader in NYC.  He graduated from the University of Maryland with a BS in Finance and Marketing. He was diagnosed with KLS in 1995 at the age of 15 and suffered 17 episodes. Inspired by his parents dedication to the KLS Foundation, Dani joined the board of the KLS Foundation in 2006. Email: dani@klsfoundation.org

Caron Krieger – United Kingdom

Caron is the mother of Ben who was diagnosed with KLS in 2010.  She has a BA in law from the University of Cambridge and worked as a media lawyer.  She is a governor of Fairley House, a school for specific learning difficulties.  Together with other parents she set up KLS Support UK  in 2011. Email: caron@klsfoundation.org

Alanna Wong, Social Media Manager

Alanna has spent the past eight years dedicating her life to raising awareness for Kleine-Levin Syndrome (KLS) in an effort to help other sufferers. Alanna’s focus has been to raise funds for research, engage and connect with the community, and facilitate the KLS Foundation website and social media pages. Alanna is writing her KLS memoir. She also works independently as an entrepreneur and Social Media Manager for other organizations. Email: alanna@klsfoundation.org

Gaylene Grossman, RN, BSN, CNOR

Gaylene is a Registered Nurse and the Mother of Brian Sabul who had his first episode in April of 2006.  It is because of the Foundation’s presence that Brian was diagnosed within weeks of his illness which is a testament to the need for the awareness and outreach that the KLS Foundation promotes.  Gaylene has partnered with Board of Directors member Lori Haller to present KLS information to Pediatric, Neurology, Psychiatrics and Sleep Disorder Specialists at major medical centers. Email: gaylene@klsfoundation.org

Jenny Grossman

Jenny is the proud mom of Cooper & Charlie Grossman.  Unfortunately, Cooper at age 15 was diagnosed with KLS March of 2017.  His diagnosis of KLS was very quick, due to the amazing information/contacts provided by the KLS foundation’s website.  Since receiving Cooper’s KLS diagnosis, Jenny and her husband Gary have made it their mission to raise awareness and funds for KLS research. They’ve updated the KLSF logo, spearheaded to have the KLSF website updated, have been featured in local papers informing the community about KLS, spoke about KLS in front of over 900 plus people at the NJ Youth Soccer Awards dinner this past February, raised over $130,000 plus for research through numerous fundraisers created by family & friends, and featured KLS front and center in Time Square on a digital billboard during the recent United Airlines’s NYC half marathon on March 18, 2018.  People from all over the world, were informed about KLS in a very impactful way. The Grossmans turned their feelings of helplessness and hopelessness, into positive change and won’t stop until a cure is found!

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