KLS Foundation MEDICAL AND PATIENT ADVISORY COMMITTEE
Patient Advisory Committee
Michael Hamper – Chairperson
Email: michael@klsfoundation.org
ADVISORY BOARD
Donna White, Mother of Ryan McKinney
Donna’s son Ryan was misdiagnosed for a period of over seven years. As a result of medication prescribed before he received a diagnosis of KLS, Ryan suffered a heart attack and died on February 17, 2006. Ryan’s death sparked Donna’s mission to raise the level of KLS awareness in hopes that other children would not continue to suffer from this devastating disorder. In 2007, the first annual “Walking for Ryan Festival” was held in South Carolina and raised nearly $10,000 for KLS research. Donna is an English as a second language instructor/Bilingual Spanish Translator for the Lancaster County School District and Founder of the South Carolina Chapter of Kleine Levin Syndrome at Lancaster, SC. Email: donna@klsfoundation.org
Medical Advisory Board
The Foundation established a Medical Advisory Board to provide guidance to the Board of Directors on medical issues. This Board is composed of experts in many disciplines relating to KLS, including neurology, sleep disorders, endocrinology, radiology and research.
Isabelle Arnulf, MD, PhD; Sleep Center, University Hospital, Pitié-Salpêtrière, Paris, France
Orrin Devinsky, MD; Department of Neurology, NYU School of Medicine
Nathan Gadoth, MD; Department of Neurology, Meir Hospital, Israel
Joel Herskowitz, MD; New England Medical Center, Boston
Emmanuel Mignot MD PhD; Professor of Psychiatry and Behavioral Sciences, Stanford University Center for Narcolepsy
Arthur Safran, MD; Chief of Neurology, Metro West Medical Center, Framingham MA
Tom Scammell, MD; Department of Neurology, Harvard Institutes of Medicine
Norman Spack, MD; Clinical Director, Endocrine Division, Boston Children’s Hospital
Christopher Hamper PA-C; Jupiter Primary Care Group, Jupiter, FL