KLS Foundation MEDICAL AND PATIENT ADVISORY COMMITTEE

Patient Advisory Committee 

Michael Hamper – Chairperson

Email: michael@klsfoundation.org

ADVISORY BOARD 

Donna White, Mother of Ryan McKinney

Donna’s son Ryan was misdiagnosed for a period of over seven years. As a result of medication prescribed before he received a diagnosis of KLS, Ryan suffered a heart attack and died on February 17, 2006. Ryan’s death sparked Donna’s mission to raise the level of KLS awareness in hopes that other children would not continue to suffer from this devastating disorder. In 2007, the first annual “Walking for Ryan Festival” was held in South Carolina and raised nearly $10,000 for KLS research. Donna is an English as a second language instructor/Bilingual Spanish Translator for the Lancaster County School District and Founder of the South Carolina Chapter of Kleine Levin Syndrome at Lancaster, SC. Email: donna@klsfoundation.org

Medical Advisory Board

The Foundation established a Medical Advisory Board to provide guidance to the Board of Directors on medical issues. This Board is composed of experts in many disciplines relating to KLS, including neurology, sleep disorders, endocrinology, radiology and research.

Isabelle Arnulf, MD, PhD; Sleep Center, University Hospital, Pitié-Salpêtrière, Paris, France

Orrin Devinsky, MD; Department of Neurology, NYU School of Medicine

Nathan Gadoth, MD; Department of Neurology, Meir Hospital, Israel

Joel Herskowitz, MD; New England Medical Center, Boston

Emmanuel Mignot MD PhD; Professor of Psychiatry and Behavioral Sciences, Stanford University Center for Narcolepsy

Arthur Safran, MD; Chief of Neurology, Metro West Medical Center, Framingham MA

Tom Scammell, MD; Department of Neurology, Harvard Institutes of Medicine

Norman Spack, MD; Clinical Director, Endocrine Division, Boston Children’s Hospital

Christopher Hamper PA-C; Jupiter Primary Care Group, Jupiter, FL