First Annual Coop-A-Thon Event Raises Over $100,000 for KLS Research!
The first annual Coop-A-Thon took place on October 21, 2017, at YB Fitness in Short Hills, N.J. The event came to be after very close family friends felt the need to help Coop & the rest of the KLS sufferers. Feeling helpless, they reached out to a local gym...
Support the KLS Foundation by Using Our Amazon Smile Link
Did you know that amazon donates 0.5% of every purchase made to the charity of your choice? As soon as we learned about this fantastic benefit, we signed up. To date we have received $685.02 from amazon smile. Our goals are to raise awareness, support scientific...
Yoga in the Park with the Yoga Exchange Kleine-Levin Syndrome Fund Raising Event
We have come a long way in research over the past few decades due to the generosity of others putting on fundraising events and donating to the KLS Foundation research fund. We are happy to share that the Grossman family is hosting a Fundraising event for the KLS...
“Touched by 2015 Run for Ryan” by Gaylene Grossman
"Touched by 2015 Run for Ryan" by Gaylene Grossman I feel very fortunate to have attended the 2015 Run for Ryan in Lancaster, South Carolina along with my son Brian, who is a person with KLS. It was an experience I will never forget and one that touched me deeply....
Kleine-Levin Syndrome Foundation Fundraiser July 19, 2014.
Kleine-Levin Syndrome Foundation Fundraiser Benefiting: Nick Smith and all adolescents living with KLS All Proceeds go to Awareness and Research for the Kleine Levin Syndrome Foundation When: Saturday, July 19, 2014 Where: Indian Lake Country Club 10502 E 75th Street,...
Kleine Levin Syndrome 10K Run
Kleine Levin Syndrome 10K Run "For many young people with Kleine Levin Syndrome it feels like time travelling - their last clear memory is being at a certain place doing whatever normal people do and suddenly they wake up somewhere else, they have no idea time has...
Running for Ryan – County Track meet headlines KLS Event – Lancaster News
The Running for Ryan KLS Fundraiser was held on April 5th, 2014! The event is held in memory of Ryan McKinney, who died of cardiac arrhythmia, which was caused by a missed diagnosis and over medication of KLS. Read the following article here: Running for Ryan Article...
Announcing the Sixth Annual Run for Ryan
Spring is here and so is the 6th annual Run for Ryan, a Kleine - Levin Syndrome Fundraiser. On Saturday April 14, a committee of dedicated volunteers headed by Donna White will sponsor the 6th annual Run for Ryan. This is a special day in Lancaster, South Carolina...
KLS T-Shirts now available
The Kleine Levin Syndrome (KLS) T-Shirts are an easy and fun way to spread awareness and remember those who are suffering from KLS. KLS T-Shirts are only $22.50 and can be purchased via eBay by following the link below....
KLS Conference Videos Available!
The First International KLS Conference that was held in San Francisco on August 12-14th 2011 was a great success and was attended by well over 200 participants. This was a great event for patients, families and researchers to meet face to face and share experiences...