“Touched by 2015 Run for Ryan” by Gaylene Grossman
"Touched by 2015 Run for Ryan" by Gaylene Grossman I feel very fortunate to have attended the 2015 Run for Ryan in Lancaster, South Carolina along with my son Brian, who is a person with KLS. It was an experience I will never forget and one that touched me deeply....
Kleine-Levin Syndrome Foundation Fundraiser July 19, 2014.
Kleine-Levin Syndrome Foundation Fundraiser Benefiting: Nick Smith and all adolescents living with KLS All Proceeds go to Awareness and Research for the Kleine Levin Syndrome Foundation When: Saturday, July 19, 2014 Where: Indian Lake Country Club 10502 E 75th Street,...
Kleine Levin Syndrome 10K Run
Kleine Levin Syndrome 10K Run "For many young people with Kleine Levin Syndrome it feels like time travelling - their last clear memory is being at a certain place doing whatever normal people do and suddenly they wake up somewhere else, they have no idea time has...
Running for Ryan – County Track meet headlines KLS Event – Lancaster News
The Running for Ryan KLS Fundraiser was held on April 5th, 2014! The event is held in memory of Ryan McKinney, who died of cardiac arrhythmia, which was caused by a missed diagnosis and over medication of KLS. Read the following article here: Running for Ryan Article...
Announcing the Sixth Annual Run for Ryan
Spring is here and so is the 6th annual Run for Ryan, a Kleine - Levin Syndrome Fundraiser. On Saturday April 14, a committee of dedicated volunteers headed by Donna White will sponsor the 6th annual Run for Ryan. This is a special day in Lancaster, South Carolina...
KLS T-Shirts now available
The Kleine Levin Syndrome (KLS) T-Shirts are an easy and fun way to spread awareness and remember those who are suffering from KLS. KLS T-Shirts are only $22.50 and can be purchased via eBay by following the link below....
KLS Conference Videos Available!
The First International KLS Conference that was held in San Francisco on August 12-14th 2011 was a great success and was attended by well over 200 participants. This was a great event for patients, families and researchers to meet face to face and share experiences...
Life and Strength Following KLS
Dani (left) and Arielle Farber (right) finish the race! More than 4 years after their last episodes of KLS, the Farber siblings tackle the last of the physical and emotional hurdles in their journey to overcome KLS and move beyond the healing process towards full and...
Cool KLS Wrist Bands Now Available
Spread the word with KLS awareness wrist bands The Kleine Levin Syndrome (KLS) Bands are an easy and fun way to spread awareness and remember those who are suffering from KLS. We selected the color silver to represent the silver lining of hope, happiness, and health...
KLS Fundraiser: Walk for Ryan
The 4th annual Walk for Ryan KLS Fundraiser took place on April 17, 2010 in Lancaster, South Carolina Donna White led the initiative to honor the memory of her son Ryan, who struggled with KLS and tragically died of unrelated health complications. The fundraiser took...