Cool KLS Wrist Bands Now Available
Spread the word with KLS awareness wrist bands The Kleine Levin Syndrome (KLS) Bands are an easy and fun way to spread awareness and remember those who are suffering from KLS. We selected the color silver to represent the silver lining of hope, happiness, and health...
KLS Fundraiser: Walk for Ryan
The 4th annual Walk for Ryan KLS Fundraiser took place on April 17, 2010 in Lancaster, South Carolina Donna White led the initiative to honor the memory of her son Ryan, who struggled with KLS and tragically died of unrelated health complications. The fundraiser took...
ANNUAL RUN FOR RYAN SCHEDULED FOR APRIL 17
The annual Run for Ryan is planned this year for April 17 at the Lancaster High School T-track from 10 am until 1 pm. The Lancaster High School Athletic Department will sponsor the countywide track event with all of the county’s high schools represented as well as...
Spring Montvale Plaza Fundraiser Raises Research Funds
Third KLS Fundraiser at The Montvale Plaza in Stoneham Massachusetts was another successful event. About 300 friends and family of the Penny family, whose son Joe has KLS, came out to support the fundraiser and enjoy a spectacular night of dinner, dancing and an...
Hundreds attend annual KLS event in South Carolina
With her blue Run for Ryan hat pulled down low, shielding her from the near 90 degree heat, Donna White spent much of Saturday raising money in honor of her late son. Hundreds of supporters joined her, turning out for the third annual Run for Ryan event at the...
KLS Run for Ryan Set for April 25
The annual KLS Run for Ryan is set for April 25, 2009 in Lancaster, South Carolina at the Lancaster High School track. Donna White has organized this event each year since her son Ryan, who suffered from KLS, died of an unrelated heart condition. The event raises...
Washington DC Marine Corps Marathon a Success
Washington DC- On a beautiful Sunday morning in October Oren, a friend of the KLS Foundation, ran the Marine Corps Marathon to raise funds for KLS medical research. With “Running For KLS” written on his legs and friends cheering him on along the way, Oren completed...
Creative Fundraising Ideas at Your Celebrations
KLS families are finding creative ways to remember the needs of the KLS Foundation at life cycle events. Their efforts help further the mission of the KLS Foundation. KLS foundation board member Dani Farber recently celebrated his wedding to Danielle Friedberg. The...
Running for KLS Kids Fundraiser – October 2008
Marine Corps Marathon in Washington DC The second marathon runner for KLS Kids is running the Marine Corps Marathon in Washington DC to raise money for the KLS Foundation’s medical research. Following in the footsteps of Danielle Friedberg who ran the NYC Marathon for...
Walking For Ryan KLS fundraiser March 29, 2008
Lancaster South Carolina The Lancaster High School track team held a relay carrying a KLS flag. The second annual “Walking for Ryan” KLS fundraiser was again a success, despite the overcast weather. Approximately 200 people attended and learned about KLS from...