The Patient is In Podcast
May 24, 2021
“Some call it ‘sleeping beauty syndrome.’ Its actual name is Kleine-Levin Syndrome or (KLS). It’s a rare and complex neurological disorder that causes excessive sleepiness. Between episodes, those with KLS appear totally healthy, but when the disorder strikes, a person with KLS can sleep up to 23 hours a day, getting up only to eat and use the bathroom. In this episode, we hear from siblings Dani Farber and Arielle Poleg who both started showing symptoms of KLS as teenagers, which is when the syndrome typically presents. They were the first sibling pair ever known to both have KLS.
‘When I was awake, I had no energy at all. I could barely walk, I couldn’t get up to eat or drink. I didn’t look like myself … probably the most scary part of it all is that I didn’t feel like myself. I was confused, I was disoriented,’ says Dani.”