by KLS Foundation | Jul 11, 2022 | Fundraisers, KLS Events
Each year for more than a decade, the family of Ryan McKinney hosts a community fundraiser to raise awareness of KLS in memory of their beloved son and brother who suffered from KLS and passed away of a heart ailment in 2006. Launched in 2007, the event is held each...
by KLS Foundation | Apr 26, 2022 | KLS in the Media
“This too shall pass:” This is the simple phrase that stuck with me as I endured fifteen KLS episodes. As I approach my decade milestone since my last episode, I feel reflective and so fortunate to have come through to the other side. During my adolescence, KLS...
by vcc | Mar 2, 2022 | KLS in the Media
NEWS RELEASE: Kleine-Levin Syndrome Foundation Urges Lawmakers to Bring National Awareness to KLS research Foundation Honors KLS community on Rare Disease Day by lobbying for inclusion in NIH Sleep Research Plan Feb. 28, 2022 – WASHINGTON: The Kleine-Levin Syndrome...
by KLS Foundation | Feb 3, 2022 | KLS in the Media
I am 33, I live in Toronto, I have been married for five years and I have two beautiful daughters, ages 4 and 1.5, a fulfilling career and wonderful friendships. My last episode was in January 2015. I have reached the point in my life that I no longer think about KLS...
by KLS Foundation | Oct 24, 2021 | Fundraisers, KLS Events
The Yoga Exchange, a yoga studio located outside Boston, hosted its 5th Annual Yoga in the Park fundraiser to benefit KLS research and raised $12,425! Because of the COVID-19 epidemic, the class took place virtually. Supporters unable to attend were invited to order a...
by KLS Foundation | Jun 5, 2021 | Fundraisers, KLS Events
The 1st Annual KLS Cardio Tennis Tournament was held at Fairleigh Dickinson University and hosted by KLS Foundation Board Member Jenny Grossman and her family. Tennis instructor Tom Battaglia and his partner Matt Deitch generously donated their time and arranged for...
by KLS Foundation | Feb 26, 2021 | KLS Research
How my story began… It all started years ago, February 2013 to be exact. I was in 8th grade and was studying hard for the my state standardized test, the FCAT. In addition, I was admitted into the incoming class of Pre-Medical Magnet students at my high school. Things...
by KLS Foundation | Oct 31, 2019 | Fundraisers, KLS Events
Excited to let you all know, the link is live!!!!!! PLEASE sign up to spin in person, virtually or to be a sponsor for the 3rd Annual Coop-A-Thon! Your constant support gives me HOPE, that the cause and cure for KLS will be found!!! It takes a village. Please click...
by KLS Foundation | Aug 31, 2019 | Uncategorized
Attend in person or on a “virtual” mat if you can’t be with us. Registration is free! Description Outdoor open donation yoga class to support Kleine-Levin Syndrome research. This gentle, slow flow Spa yoga class will be led by teachers from The Yoga Exchange in...
by KLS Foundation | Apr 29, 2019 | Fundraisers, KLS Events
Courts for Life and University California Riverside (UCR) Tennis on Campus are partnering up to host the 4th Annual Charity Doubles Tournament. Courts for Life is glad to be promoting Kleine-Levin Syndrome (KLS) awareness once again! All proceeds raised by this event...
