Participation in medical research is extremely important: The information and insights discovered can help doctors diagnose KLS faster and ultimately lead to a cause and a cure.


The Stanford University Center for Narcolepsy and KLS Research currently seeks new KLS patients of all ages for a study investigating the genetic basis of KLS. Additionally, Stanford is recruiting for relatives or friends WITHOUT KLS as controls.

You are eligible if you are willing to provide a one-time blood sample and documentation of diagnosis. The staff at Stanford’s lab will walk patients and their caregivers through exactly how to send a blood sample and can answer any questions.

You can sign up here.

Every member of the KLSF board has either participated in these research studies or has children who have. Please reach out to if you have any questions.

To learn more about ongoing KLS research, please email or contact the clinical coordinator, Abby Cirelli, at

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