Participation in medical research is extremely important: The information and insights discovered can help doctors diagnose KLS faster and ultimately lead to a cause and a cure.

STANFORD UNIVERSITY KLS RESEARCH PROGRAM

The Stanford University Center for Narcolepsy and KLS Research currently seeks new KLS patients of all ages for a study investigating the genetic basis of KLS. Additionally, Stanford is recruiting for relatives or friends WITHOUT KLS as controls.

You are eligible if you are willing to provide a one-time blood sample and documentation of diagnosis. The staff at Stanford’s lab will walk patients and their caregivers through exactly how to send a blood sample and can answer any questions.

KLS patients may also be eligible to participate in actigraphy studies in Kleine-Levin Syndrome.

You can sign up here.

Every member of the KLSF board has either participated in these research studies or has children who have. Please reach out to info@klsfoundation.org if you have any questions.

To learn more about ongoing KLS research, please email kls_studies@stanford.edu or contact the clinical coordinator, Abby Cirelli, at acirelli@stanford.edu

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