Participation in medical research is extremely important: The information and insights discovered can help doctors diagnose KLS faster and ultimately lead to a cause and a cure.
STANFORD UNIVERSITY KLS RESEARCH PROGRAM
The Stanford University Center for Narcolepsy and KLS Research currently seeks new KLS patients of all ages for a study investigating the genetic basis of KLS. Additionally, Stanford is recruiting for relatives or friends WITHOUT KLS as controls.
You are eligible if you are willing to provide a one-time blood sample and documentation of diagnosis. The staff at Stanford’s lab will walk patients and their caregivers through exactly how to send a blood sample and can answer any questions.
KLS patients may also be eligible to participate in actigraphy studies in Kleine-Levin Syndrome.
You can sign up here.
Every member of the KLSF board has either participated in these research studies or has children who have. Please reach out to email@example.com if you have any questions.